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Reflections on being a first generation self-advocate: belonging, social connections, and doing things that matter

机译:关于成为第一代自我拥护者的思考:归属感,社交关系和做重要的事情

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摘要

Background Despite good policy intentions, people with intellectual disability continue to be socially excluded. Social geographers suggest the potential of self-authored spaces as catalysts for social inclusion. One such space, self-advocacy, is commonly perceived as part of a political movement for social change rather than a vehicle for social inclusion of its members. This paper investigated what involvement in self-advocacy has meant to long-term members of a self-advocacy group in Victoria, Australia. Methods In-depth interviews were conducted with 12 self-advocates about their reflections on involvement in the group. These data together with the commentary of 5 self-advocates during interviews with 18 self-advocacy supporters about their recollections of involvement in the group were transcribed and analysed thematically. Findings Through their involvement in self-advocacy, members of the group had gained a sense of belonging, social connections, and purposeful occupation, which included paid project work, lobbying, and organisational leadership and management. Conclusions This study suggests that self-advocacy groups can be places that foster social inclusion, potentially offering “membership” of an exclusive group, a wider social movement and of mainstream society.
机译:背景知识尽管有良好的政策意图,智障人士仍被社会排斥。社会地理学家认为,自我创作的空间有可能促进社会包容。一种这样的空间,即自我倡导,通常被视为社会变革的政治运动的一部分,而不是其成员进行社会包容的工具。本文调查了参与自我宣传对澳大利亚维多利亚州自我宣传组织的长期成员意味着什么。方法对12名自我倡导者进行了深入访谈,以了解他们对小组参与的反思。这些数据以及5名自诉者在与18名自诉者的访谈中对他们参与小组的回忆所做的评论被转录并进行了主题分析。调查结果通过参与自我倡导,小组成员获得了归属感,社交关系和有目的的职业,包括有偿项目工作,游说以及组织领导和管理。结论这项研究表明,自我倡导团体可以成为促进社会包容的场所,并有可能成为一个专属团体的“成员”,更广泛的社会运动和主流社会。

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