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A problem with inclusion in learning disability research.

机译:学习障碍研究中包含的一个问题。

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People with severe learning disability are particularly difficult to include in the research process. As a result, researchers may be tempted to focus on those with learning disability who can be included. The problem is exacerbated in this field as the political agenda of inclusion and involvement is driven by those people with learning disability who are the higher functioning. To overcome this we should first detach the notion of consent from ideas about autonomy and think instead of it as a way to avoid wronging others; this fits the original historical use of consent in research. This allows us to think in terms of including participants to the best of their abilities rather than in terms of a threshold of autonomy. Researchers could then use imaginative ways to include the least able and to ensure they are not wronged in research or by exclusion from it.
机译:具有严重学习障碍的人特别难以纳入研究过程。结果,研究人员可能会倾向于将注意力集中在学习障碍者身上。在这个领域,由于包容性和参与性的政治议程是由学习功能较高的那些有学习障碍的人所驱动的,这个问题更加严重。为了克服这个问题,我们首先应该将同意的概念与关于自治的思想分开,并以代替它的思想来避免对别人的冤屈。这符合研究中同意的原始历史用法。这使我们可以考虑让参与者尽其所能,而不是根据自主权的门槛来考虑。然后,研究人员可以使用富有想象力的方法来包括能力最弱的人,并确保他们不会在研究中受到误解或被排除在研究之外。

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