Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy

Propp Roni; McAdam Laura; Davis Aileen M.; Salbach Nancy M.; Weir Shannon; Encisa Clarissa; Narayanan Unni G.

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Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy

机译：Duchenne肌营养不良儿童肌营养不良儿童健康指标的发展与内容验证

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AimTo develop a patient-reported outcome measure that comprehensively captures the health-related priorities of children with Duchenne muscular dystrophy (DMD).

机译：AIMTO制定患者报告的结果措施，全面地捕获了Duchenne肌营养不良（DMD）的儿童与儿童的健康相关优先事项。

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《Developmental Medicine and Child Neurology》 |2019年第1期|共8页
作者
Propp Roni; McAdam Laura; Davis Aileen M.; Salbach Nancy M.; Weir Shannon; Encisa Clarissa; Narayanan Unni G.;
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Hosp Sick Children Res Inst Child Hlth Evaluat Sci Program Toronto ON Canada;

Holland Bloorview Kids Rehabil Hosp Toronto ON Canada;

Univ Toronto Rehabil Sci Inst Toronto ON Canada;

Univ Toronto Rehabil Sci Inst Toronto ON Canada;

Hosp Sick Children Res Inst Child Hlth Evaluat Sci Program Toronto ON Canada;

Hosp Sick Children Res Inst Child Hlth Evaluat Sci Program Toronto ON Canada;

Hosp Sick Children Res Inst Child Hlth Evaluat Sci Program Toronto ON Canada;

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正文语种 eng
中图分类神经病学;
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1. Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy [J] . Propp Roni, McAdam Laura, Davis Aileen M., Developmental Medicine and Child Neurology . 2019,第1期

机译：Duchenne肌营养不良儿童肌营养不良儿童健康指标的发展与内容验证
2. Development and sensibility evaluation of the muscular dystrophy child health index of life with disabilities questionnaire [J] . Propp R., Weir S., Encisa C., Neuromuscular disorders: NMD . 2017,第Suppla2期

机译：残疾肌营养不良儿童健康指数的开发及敏感性评价
3. Development and sensibility evaluation of the muscular dystrophy child health index of life with disabilities questionnaire [J] . Propp R., Weir S., Encisa C., Neuromuscular disorders: NMD . 2017,第Suppla2期

机译：残疾肌营养不良儿童健康指数的开发及敏感性评价
4. EMG-based Indicators of Muscular Co-Activation during Gait in Children with Duchenne Muscular Dystrophy [C] . M. Rinaldi, M. Petrarca, A. Romano, Annual International Conference of the IEEE Engineering in Medicine and Biology Society . 2019

机译：基于肌电图的杜兴氏肌营养不良症儿童步态中肌肉共激活的指标
5. Parents' perspectives on Duchenne/Becker muscular dystrophy and specific learning disabilities: A grounded theory study. [D] . Webb, Carol Lee. 2002

机译：父母对杜兴/贝克尔肌营养不良症和特定学习障碍的观点：扎根的理论研究。
6. Reliability and validity of the Thai version of the Pediatric Quality of Life inventory™ 3.0 Duchenne Muscular Dystrophy module in Thai children with Duchenne Muscular Dystrophy [O] . Apirada Thongsing, Surachai Likasitwattanakul, Oranee Sanmaneechai 2019

机译：泰文版小儿生活质量清单 3.0 Duchenne肌营养不良模块在泰国患有Duchenne肌营养不良的儿童中的信度和效度
7. Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy [O] . Roni Propp, Laura McAdam, Aileen M Davis, 2018

机译：Duchenne肌营养不良儿童残疾儿童肌营养不良儿童健康指标的开发与内容验证

Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy

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