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Quality of life and contact with healthcare systems among patients with psoriasis and psoriatic arthritis: results from the NORdic PAtient survey of Psoriasis and Psoriatic arthritis (NORPAPP)

机译:牛皮癣和牛皮癣关节炎患者的生活质量和与医疗系统的接触:来自牛皮癣和牛皮癣关节炎的北欧患者调查(NORPAPP)的结果

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摘要

Psoriasis (skin psoriasis, PsO) is a chronic inflammatory condition. In about one-third of cases, the joints are affected (psoriatic arthritis, PsA). Both conditions, especially PsA, profoundly impact patients’ health-related quality of life (HRQoL). To describe the impact of psoriasis on HRQoL and patients’ contact with the healthcare system in Sweden, Denmark, and Norway, the NORdic PAtient survey of Psoriasis and Psoriatic arthritis (NORPAPP) asked 22,050 adults randomly selected in Sweden, Denmark and Norway if they had psoriasis. 1264 individuals who reported physician-diagnosed PsO/PsA were invited to the full survey; 1221 responded (74.6% diagnosed with PsO alone; 25.4% with PsA ± PsO). Respondents with PsA most frequently consulted a rheumatologist; however, 14.3% had never seen a rheumatologist. Respondents with PsO alone most frequently consulted a general practitioner and 10.7% had never seen a dermatologist (although those with severe symptoms visited dermatologists more often). Negative impacts on HRQoL were reported by 38.1% of respondents with PsO [mostly limitations on clothing (22.6%), sleep disorders (16%), and depression/anxiety (16%)] and by 73% of respondents with PsA [mostly limitations on clothing (41.8%), sports/leisure (44.0%), or daily routine (45.1%) and sleeping disorders]. Absence from work/education was more common with PsA ± PsO (51.9%) than PsO alone (15.1%). In this survey in Sweden, Denmark, and Norway, the impact of psoriasis on the respondents’ HRQoL was profound and was greater for PsA than for PsO, as was sickness absence. Sleeping disorders and depression were common and should not be overlooked.Electronic supplementary materialThe online version of this article (10.1007/s00403-019-01906-z) contains supplementary material, which is available to authorized users.
机译:牛皮癣(皮肤牛皮癣,PsO)是一种慢性炎症性疾病。在大约三分之一的情况下,关节受到感染(银屑病关节炎,PsA)。这两种情况,尤其是PsA,都会深刻影响患者与健康相关的生活质量(HRQoL)。为了描述牛皮癣对HRQoL的影响以及患者在瑞典,丹麦和挪威与医疗系统的接触,北欧银屑病和牛皮癣性关节炎患者(NORPAPP)的问卷调查询问了在瑞典,丹麦和挪威随机选择的22,050名成年人银屑病。 1264位报告了医生诊断的PsO / PsA的人被邀请参加全面调查;有1221例反应(74.6%的患者被诊断为仅PsO; 25.4%的患者为PsA±PsO) PsA的受访者最常咨询风湿病专家;但是,有14.3%的人从未见过风湿病医师。仅有PsO的受访者最常咨询全科医生,并且10.7%的人从未见过皮肤科医生(尽管症状较重的人更经常去皮肤科医生那里)。 PsO的受访者对HRQoL的负面影响为38.1%[主要是对服装的限制(22.6%),睡眠障碍(16%)和抑郁/焦虑(16%)],PsA的受访者为73%[主要是限制服装(41.8%),运动/休闲(44.0%)或日常(45.1%)和睡眠障碍]。与单纯的PsO(15.1%)相比,PsA3±PsO的缺勤/受教育更为普遍(51.9%)。在瑞典,丹麦和挪威的这项调查中,牛皮癣对受访者的HRQoL的影响是深远的,并且PsA比PsO更大,因为没有病。睡眠障碍和抑郁症很常见,不应忽视。电子补充材料本文的在线版本(10.1007 / s00403-019-01906-z)包含补充材料,可供授权用户使用。

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