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A Qualitative Secondary Evaluation of Statewide Follow-Up Interviews for Abnormal Newborn Screening Results for Cystic Fibrosis and Sickle Cell Hemoglobinopathy

机译：对囊性纤维化和镰状细胞血管病病患的异常新生儿筛查结果的全态次要进行的定性次要评估

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摘要

PurposeThe purpose of this qualitative analysis was to assess parental acceptability of large-scale, telephone follow-up regarding their infants' newborn screening (NBS) results indicating carrier status for sickle cell hemoglobinopathy (SCH) and cystic fibrosis (CF).

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期刊名称 other
作者
Alison La Pean; Jenelle L. Collins; Stephanie A. Christopher; Kerry L. Eskra; Sara Roedl; Audrey Tluczek; Michael H. Farrell;
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年(卷),期 -1(14),2
年度 -1
页码 207–214
总页数 14
原文格式 PDF
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中图分类
关键词
newborn screening follow-up counseling cystic fibrosis carrier sickle cell trait provider-patient communication;

机译：新生儿筛查;随访咨询;囊性纤维化病携带者;镰状细胞特征;医患沟通;

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专利

1. A qualitative secondary evaluation of statewide follow-up interviews for abnormal newborn screening results for cystic fibrosis and sickle cell hemoglobinopathy [J] . LaPeanA., CollinsJ.L., ChristopherS.A., Genetics in medicine . 2012,第2期

机译：对全州随访访谈进行的囊性纤维化和镰状细胞血红蛋白病异常新生儿筛查结果的定性二次评估
2. Factors that influence parents' experiences with results disclosure after newborn screening identifies genetic carrier status for cystic fibrosis or sickle cell hemoglobinopathy [J] . CollinsJ.L., LaPeanA., OToolF., Patient education and counseling . 2013,第3期

机译：新生儿筛查后影响父母体验结果披露的因素确定了囊性纤维化或镰状细胞血红蛋白病的遗传携带者状况
3. Informing Children of Their Newborn Screening Carrier Result for Sickle Cell or Cystic Fibrosis: Qualitative Study of Parents’ Intentions, Views and Support Needs [J] . Fiona Ulph, Tim Cullinan, Nadeem Qureshi, Journal of genetic counseling . 2014,第3期

机译：告知儿童其镰状细胞或囊性纤维化的新生儿筛查携带者结果：定性研究父母的意向，观点和支持需求
4. Cellphone based mobile colposcope for the evaluation of women with abnormal cervical cancer screening [C] . Bruce S. Kahn, Alex J. Kass, Jill Waalen, Optics and Biophotonics in Low-Resource Settings . 2015

机译：基于手机的移动阴道镜用于评估宫颈癌筛查异常的女性
5. North Carolina metabolic newborn screening: Abnormal screen follow-up, physician knowledge and risk for transient neonatal tyrosinemia. [D] . Cobb, Kimberly Kimiko. 2006

机译：北卡罗莱纳州代谢性新生儿筛查：筛查异常，医师知识和暂时性新生儿酪氨酸血症风险。
6. Factors that Influence Parents’ Experience with Results Disclosure after Newborn Screening Identifies Genetic Carrier Status for Cystic Fibrosis or Sickle Cell Hemoglobinopathy [O] . Jenelle L. Collins, Alison La Pean, Faith O’Tool, -1

机译：新生儿筛查后影响父母对结果披露的影响的因素鉴定了囊性纤维化或镰状细胞血管病病的遗传载体状态
7. Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: Qualitative study of experience and practice [O] . Kai, J., Ulph, F., Cullinan, T., 2009

机译：通用新生儿筛查镰状细胞病和囊性纤维化后的携带者状态信息的传播：经验和实践的定性研究
8. Sickle Cell Disease: Screening, Diagnosis, Management, and Counseling in Newborns and Infants. Clinical Practice Guideline Number 6; Sickle Cell Disease: Comprehensive Screening and Management in Newborns and Infants. Quick Reference Guide for Clinicians Number 6; Sickle Cell Disease in Newborns and Infants. A Guide for Parents [R] . 1993

机译：镰状细胞病：新生儿和婴儿的筛查，诊断，管理和咨询。临床实践指南第6号;镰状细胞病：新生儿和婴儿的综合筛查和管理。第6号临床医生快速参考指南;新生儿和婴儿的镰状细胞病。家长指南

A Qualitative Secondary Evaluation of Statewide Follow-Up Interviews for Abnormal Newborn Screening Results for Cystic Fibrosis and Sickle Cell Hemoglobinopathy

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