肿瘤患儿父母照顾负担和积极应对方式状况及其相关性

摘要

Objective To investigate the level of caregivers′burden and the coping style among parents of cancer children. Methods Totally, 229 parents of cancer children participated in the investigation by Chinese version of zarit burden interview (ZBI), Chinese version of coping health inventory for parents (CHIP) and self-designed general information questionnaire. The associations between caregivers′burden and coping styles were tested by Spearman correlation analysis. Results The caregiver′s burden on the parents was in the middle level with a total score of (30.50 ± 12.24). The coping style the parents took most frequently was to unite the family and keep a positive attitude and regard it as most effective. The caregiver′s burden was negatively associated with the positive coping style . Conclusion The parents of cancerous children suffer from middle level of burden . Nurses should assess the caregiver′s burden, provide targeted interventions to relieve it, help the to establish effective coping style and change their psychological and mental state and ultimately improve their quality of life.%目的 了解肿瘤患儿父母照顾负担以及积极应对方式状况,并探讨两者的相关性,为制订降低患儿父母照顾负担的对策提供理论依据.方法 采用一般情况调查表,照顾负担量表(zarit burden interview,ZBI),父母应对方式量表(coping health inventory for parents,CHIP)对229名肿瘤患儿父母进行调查,患儿父母照顾负担和应对方式的相关性采用Spearman相关性分析.结果 患儿父母照顾负担总得分为(30.50±12.24)分;患儿父母采用较多的前8项积极应对方式主要是来自"团结这个家庭以及对未来保持希望"的应对方式;患儿父母照顾负担与积极应对方式呈负相关(P<0.05).结论 肿瘤患儿父母照顾负担处于中等水平.护理人员应对肿瘤患儿父母照顾负担及时进行评估,并采取相应的措施缓解这种负担压力,帮助其建立有效应对方式,改善其心理状况和精神状态,进而提高其生活质量.