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TALKING TIME: A pilot randomized controlled trial investigating social support for informal caregivers via the telephone

机译:谈话时间:通过电话调查对非正式护理人员的社会支持的飞行员随机对照试验

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摘要

Abstract Background Caring for people with dementia at home requires considerable time, organization and commitment. Therefore, informal caregivers of people with dementia are often overburdened. This study examined the effects of the telephone-based Talking Time intervention, which is an approach used to strengthen the psychological health-related quality of life (HRQoL) and social support of informal caregivers of people with dementia living at home. Methods This study was a Medical Research Council framework phase two randomized controlled trial. The intervention consisted of a preliminary talk, information booklet, six structured telephone-based support group meetings and a structured written self-evaluation of each support group meeting. The control participants performed their usual individual self-organized care. After completing the data collection, the control group received the Talking Time intervention for fidelity reasons. The primary outcome was the self-rated psychological HRQoL of the informal caregivers, which was measured with the mental component summary of the General Health Survey Questionnaire Short Form 12 (SF-12). Results Thirty-eight informal caregivers and their relatives were included and allocated to the intervention or control groups (n = 19 each). After 3 months, the Talking Time intervention group demonstrated an increase in the self-rated psychological HRQoL scores, whereas the scores decreased in the control group. However, the standardized effect size of 1.65 (95% Confidence Interval, − 0.44 – 3.75) was not significant. Additionally, the secondary outcomes demonstrated no significant results. The differences between the groups in most outcomes were in the expected direction. No adverse effects were identified due to the intervention. Conclusions The Talking Time intervention is feasible and shows nonsignificant promising results with regard to the self-rated psychological HRQoL. After further adjustment, the intervention needs to be evaluated in a full trial. Trial registration Clinical Trials: NCT02806583 , June 9, 2016 (retrospectively registered).
机译:抽象背景照顾有痴呆症的人们在家需要相当的时间,组织和承诺。因此,具有痴呆症的人的非正式护理人员往往负担过重。本研究审查了基于电话的谈话时间干预的影响,这是一种用于加强心理健康有关的生活质量(HRQOL)和社会护理人员的社会支持的方法。方法本研究是一项医学研究委员会框架第2期随机对照试验。干预由初步谈话,信息手册,六个结构化的基于电话的支持小组会议以及每个支持小组会议的结构性书面自我评估。控制参与者执行了他们通常的个人自我组织护理。完成数据收集后,对照组收到富达原因的通话时间干预。主要结果是非正式护理人员的自级心理HRQOL,其用一般卫生调查问卷调查问卷短片12(SF-12)的心理成分摘要来衡量。结果包括三十八个非正式护理人员及其亲属,并分配给干预或对照组(每组n = 19)。 3个月后,谈话时间干预组展示了自我评价的心理HRQOL分数,而对照组的分数下降。然而,标准化效果大小为1.65(95%置信区间, - 0.44 - 3.75)并不重要。此外,二次结果证明没有显着的结果。大多数结果中的群体之间的差异在预期的方向上。由于干预而确定不产生不良影响。结论谈话时间干预是可行的,并且对自我评价的心理HRQOL有不可取的有希望的结果。经过进一步调整后,需要在完全试验中进行干预。试验注册临床试验:2016年6月9日NCT02806583(回顾性登记)。

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