Challenges in Transition From Childhood to Adulthood Care in Rare Metabolic Diseases: Results From the First Multi-Center European Survey

著录项

• 期刊名称 Frontiers in Medicine
• 作者

  Karolina M. Stepien; Beata Kieć-Wilk; Christina Lampe; Trine Tangeraas; Graziella Cefalo; Nadia Belmatoug; Rita Francisco; Mireia del Toro; Leona Wagner; Anne-Grethe Lauridsen; Sylvia Sestini; Nathalie Weinhold; Andreas Hahn; Chiara Montanari; Valentina Rovelli; Cinzia M. Bellettato; Laura Paneghetti; Corine van Lingen; Maurizio Scarpa;

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• 作者单位

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• 年(卷),期 2021(-1),-1
• 年度 2021
• 页码 -1
• 总页数 9
• 原文格式 PDF
• 正文语种
• 中图分类 情报学;
• 关键词

  rare disease; inherited metabolic disease(s); transition process; challenge; adulthood (18 years and older); continuity of care; adult metabolic patient;

  机译：罕见的疾病;遗传性代谢疾病;过渡过程;挑战;成年（18岁及以上）;关心的连续性;成人代谢患者;