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Predicting cancer patients' participation in support groups: A longitudinal study

机译:预测癌症患者参与支持组的纵向研究

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Objective: Few patients participate in cancer support groups despite their benefits. This study investigated the importance of Theory of Planned Behaviour variables in predicting group participation, relative to disease impact, existing support, coping and demographic variables. Methods: Longitudinal study of patients with colorectal, lung or prostate cancer recruited from a specialist oncology centre. Patients self-completed surveys at baseline and six-month follow up. Baseline measures included Theory of Planned Behaviour (TPB) variables, distress and control over cancer (IPQ-R), coping (Brief COPE), social support (MSPSS), health related quality of life (EORTC QLQ-C30) and readiness to participate (PAPM). Group participation and recommendations to participate were measured at follow up. Univariable and Random Forest analyses investigated predictors of baseline readiness to participate and participation by six-month follow up. Results: N=192 patients completed baseline questionnaires. N=13 participated in a group and N=59 did not by six-month follow up. Baseline readiness to participate was associated with inadequate support and positive views of support groups. Lower cognitive functioning, recommendations and readiness to participate predicted group participation by six-month follow up. Conclusion and practice implications: Practitioners may facilitate group participation by promoting positive views of groups, recommending participation and focusing on patients experiencing greater disease impact and less existing support.
机译:目的:尽管受益,但很少有患者参加癌症支持小组。这项研究调查了计划行为理论在预测群体参与方面相对于疾病影响,现有支持,应对和人口统计学变量的重要性。方法:从专业肿瘤学中心招募的大肠癌,肺癌或前列腺癌患者的纵向研究。患者在基线和六个月的随访中自行完成调查。基线测量包括计划行为理论(TPB)变量,癌症的困扰和控制(IPQ-R),应对(简短COPE),社会支持(MSPSS),与健康相关的生活质量(EORTC QLQ-C30)和参与意愿(PAPM)。随访时评估小组的参与程度和参与建议。单变量和随机森林分析通过六个月的随访调查了基线准备参与程度和参与程度的预测因素。结果:N = 192名患者完成了基线调查问卷。 N = 13参加了一个小组,而N = 59参加了六个月的随访。基线准备参与与支持不足和支持团体的积极看法有关。在六个月的随访中,认知功能,建议和参加预测的小组参与的意愿降低。结论和实践意义:从业者可以通过提高团体的正面观点,建议参加团体以及关注那些遭受更大疾病影响和更少支持的患者来促进团体参与。

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