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Advanced cancer patients' prognostic information preferences: a review.

机译:晚期癌症患者的预后信息偏好:综述。

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摘要

Open communication in cancer care has gained increasing importance in recent years and diagnostic disclosure is now common place. However, there is a significant variability in the sharing of prognostic information. Information needs may vary significantly over the disease trajectory, and there has been relatively little work done focussing on late illness. Using systematic review procedures, 13 studies were identified that addressed this issue. The evidence shows that all patients wanted honesty from their professional team and the vast majority wanted some broad indication of their prognosis, but that preferences for quantitative information were more varied. Benefits associated with realistic awareness included enhanced control and end-of-life planning, which was seen to engender hope. However, for a proportion of patients, hope and realism were irreconcilable when presented with detailed or unequivocal information. Professionals have a responsibility to provide information to patients, but also to respect the need to maintain some ambiguity about the future, if that is a patient's wish. Therefore, prognostic discussions necessitate careful, individualised assessment, a process which can facilitate enhanced palliative care for patients with advanced cancer.
机译:近年来,癌症治疗中的开放式交流越来越重要,而诊断披露现在已很普遍。但是,共享预后信息存在很大的差异。在疾病轨迹上,信息需求可能有很大不同,并且针对晚期疾病所做的工作相对较少。使用系统的审查程序,确定了13个解决此问题的研究。证据表明,所有患者都希望他们的专业团队诚实,绝大多数患者希望他们的预后有广泛的迹象,但是对定量信息的偏爱却更多。与现实意识相关的好处包括增强控制力和报废计划,这被认为带来了希望。但是,对于一部分患者,当提供详细或明确的信息时,希望和现实是无法调和的。专业人士有责任向患者提供信息,但也有责任尊重患者对未来的不确定性(如果这是患者的意愿)。因此,对预后的讨论需要仔细,个性化的评估,该过程可以促进对晚期癌症患者的姑息治疗。

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