首页> 外文期刊>Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer >Meaning in life assessed with the 'Schedule for Meaning in Life Evaluation' (SMiLE): a comparison between a cancer patient and student sample.
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Meaning in life assessed with the 'Schedule for Meaning in Life Evaluation' (SMiLE): a comparison between a cancer patient and student sample.

机译:用“生命意义评估表”(SMiLE)评估生命意义:癌症患者和学生样本之间的比较。

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BACKGROUND: The aims of the study were (a) to assess individual meaning in life (MiL) in a mixed sample of cancer patients with the Schedule for Meaning in Life Evaluation (SMiLE), (b) to evaluate the acceptability of its French version, and (c) to compare it to a student sample. MATERIALS AND METHODS: Consecutive cancer patients (N = 100) treated as outpatients in the University Hospital Lausanne (N = 80) and in a nearby hospice (N = 20) were evaluated with the SMiLE, a reliable and validated respondent-generated instrument for the assessment of MiL. The respondents list three to seven areas, which provide meaning to their life and rate the level of importance (weighting) and satisfaction of each area. Indices of total weighting (index of weighting (IoW), range 20-100), total satisfaction (index of satisfaction (IoS), range 0-100), and total weighted satisfaction (index of weighted satisfaction (IoWS), range 0-100) are calculated. RESULTS: Patients most often indicated areas related to relationships as providing MiL, while material things were listed less often. Since satisfaction with relevant areas was high, cancer patients reported the same level of weighted satisfaction (IoWS) as a healthy student sample, assessed with the SMiLE in a prior validation study. Patients judged the SMiLE as reflecting well their MiL, not distressing to fill in and were moderately positive with regard to its helpfulness. CONCLUSIONS: MiL of cancer patients was surprisingly high, possibly due to the "response shift" of the severely ill. The SMiLE might become a useful tool for research and an opener to communication between patients and clinicians about this highly relevant topic in cancer care. Further studies with larger sample sizes and different designs, complemented by qualitative research, are needed to deepen our understanding of this so characteristically human topic, which is so easy to perceive and so difficult to grasp.
机译:背景:这项研究的目的是(a)使用生命评估表(SMiLE)评估癌症患者混合样本中的生命个体意义(MiL),(b)评估其法语版本的可接受性,以及(c)将其与学生样本进行比较。材料和方法:在洛桑大学医院(N = 80)和附近的临终关怀医院(N = 20)中作为门诊病人的连续癌症患者(N = 100)用SMiLE进行了评估,SMile是一种可靠且经过验证的由应答者生成的仪器MiL的评估。受访者列出了三到七个领域,这些领域为他们的生活提供了意义,并评估了每个领域的重要性(权重)和满意度。总加权(加权指数(IoW),范围20-100),总满意度(满意度指数(IoS),范围0-100)和总加权满意度(加权满意度(IoWS),范围0- 100)。结果:患者最常指出与关系有关的领域提供MiL,而物质方面的列出较少。由于对相关领域的满意度很高,因此癌症患者报告了与健康学生样本相同的加权满意度(IoWS),在先前的验证研究中使用SMiLE进行了评估。患者认为SMiLE很好地反映了他们的MiL,没有让他们感到痛苦,并且对它的帮助程度中等。结论:癌症患者的MiL令人惊讶地高,这可能是由于重症患者的“反应转移”所致。 SMiLE可能会成为研究的有用工具,并在患者和临床医生之间就癌症护理这一高度相关的话题进行交流。需要进一步的研究,以更大的样本量和不同的设计,再辅以定性研究,以加深我们对这一人类特有主题的理解,这一主题如此容易理解且难以把握。

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