'epileptics', 'people with epilepsy', 'pWE', 'epilepsy patients' - What is the best label?

摘要

Three years ago - and after much deliberation - the Commission on Classification and Terminology of the International League Against Epilepsy (ILAE) finally published the latest version of the official nosology of the epilepsies.1 This carefully considered work has been translated into all major languages and describes the "official" use of scores of words related to epileptic seizures and epilepsy. However, people looking for guidance on what to call those experiencing seizures will be disappointed. Although "individual patients" are mentioned in passing, the classification does not propose a more specific label for the patient group it is intended to subdivide.