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Cystic fibrosis and the National Institutes of Health consensus statement: are obstetrician-gynecologists ready to comply?

机译:囊性纤维化与美国国立卫生研究院达成共识:妇产科医生准备好遵从了吗?

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OBJECTIVE: To determine if obstetrician-gynecologists are ready to comply with the April 1997 National Institutes of Health (NIH) consensus statement regarding carrier screening for cystic fibrosis. METHODS: A multiple-choice questionnaire was mailed to all active North Carolina nonfederal physicians with a primary specialty of obstetrics and gynecology. Ten questions surveyed the participants' knowledge about cystic fibrosis. RESULTS: Two hundred eighty-six surveys were returned for a response rate of 30.4%. The respondents differed in their knowledge base depending on their specialty, age, and number of years of experience as a physician. The youngest physicians and the least experienced yielded the highest percentage correct. The questions most frequently answered correctly dealt primarily with clinical information about cystic fibrosis, whereas the questions most often answered incorrectly dealt with carrier frequency and testing information. CONCLUSION: The obstetrics-gynecology community is not yet prepared to comply with the NIH Consensus Statement to offer cystic fibrosis carrier screening to couples preconceptionally or prenatally. Further education is necessary before obstetrician-gynecologists can counsel patients adequately.
机译:目的:确定妇产科医生是否准备遵守1997年4月美国国立卫生研究院(NIH)关于囊性纤维化病携带者筛查的共识声明。方法:向所有活跃于北卡罗来纳州非妇产科医师的多选问卷邮寄,这些医师主要是妇产科。十个问题调查了参与者对囊性纤维化的知识。结果:共返回286份调查问卷,回应率为30.4%。受访者的知识基础不同,这取决于他们的专业,年龄和作为医生的经验年限。最年轻的医生和经验最少的医生得出的正确率最高。回答最正确的问题主要涉及关于囊性纤维化的临床信息,而回答最不正确的问题涉及载频和测试信息。结论:妇产科界尚未准备好遵守《美国国立卫生研究院共识声明》,以为成孕前或产前夫妇进行囊性纤维化携带者筛查。在妇产科医生可以为患者提供充分咨询之前,有必要进行进一步的教育。

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