Health-related quality of life (HRQOL) outcome measures are designed to measure the patient's appraisal of and tolerability for the manifestations of a disease and its treatments.1 Patient-reported outcomes, such as HRQOL measures, are particularly well-suited for myasthenia gravis (MG), because the manifestations of MG: (1) fluctuate over time; (2) may worsen later in the day (i.e., fatigue); and (3) are evident to the patient, often more so than to the physician (e.g., dysphagia and chewing fatigue).2 Thus, the physician's examination of an MG patient is often only a snapshot of what the patient is actually dealing with in everyday life.
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