...
首页> 外文期刊>Family practice. >'A morass of considerations': Exploring attitudes towards ethnicity-based haemoglobinopathy-carrier screening in primary care
【24h】

'A morass of considerations': Exploring attitudes towards ethnicity-based haemoglobinopathy-carrier screening in primary care

机译:“考虑的麻烦”:探讨对初级保健中基于种族的血红蛋白病携带者筛查的态度

获取原文
获取原文并翻译 | 示例
           

摘要

Background: The Netherlands does not have a national haemoglobinopathy (HbP)-carrier screening programme aimed at facilitating informed reproductive choice. HbP-carrier testing for those at risk is at best offered on the basis of anaemia. Registration of ethnicity has proved controversial and may complicate the introduction of a screening programme if based on ethnicity. However, other factors may also play a role. Objective: To explore perceived barriers and attitudes among GPs and midwives regarding the registration of ethnicity and ethnicity-based HbP-carrier screening. Methods: Six focus groups in Dutch primary care, with a total of 37 GPs (n = 9) and midwives (n = 28) were conducted, transcribed and content analysed using Atlas-ti. Results: Both GPs and midwives struggled with correctly identifying ethnicities at risk for HbP. Ethical concerns regarding privacy seemed to originate from World War II experiences, when ethnic and religious registration facilitated deportation of Jewish citizens, coupled with the political climate at the time focus groups were held. Some respondents thought the ethnicity question might undermine the relationship with their clients. Software programmes prevented GPs from registering ethnicity of patients at risk. Financial implications for patients were also a concern. Despite this, respondents seemed positive about screening and were familiar with identifying ethnicity and used this for individual patient care. Conclusions: Although health professionals are generally positive about screening, ethical, financial and practical issues surrounding ethnicity-based HbP-carrier screening need to be clarified before introducing such a programme. Primary care professionals can be targeted through professional organizations but they need national policy support.
机译:背景:荷兰没有旨在促进知情生殖选择的国家血红蛋白病(HbP)携带者筛查计划。最好在贫血的基础上对有风险的人进行HbP携带者检测。种族登记已被证明存在争议,如果基于种族,则可能会使筛查程序的引入变得复杂。但是,其他因素也可能起作用。目的:探讨全科医生和助产士在种族登记和基于种族的HbP携带者筛查登记方面的感知障碍和态度。方法:采用Atlas-ti对荷兰初级保健中的六个焦点小组进行了研究,转录和内容分析,这些焦点小组共有37名GP(n = 9)和助产士(n = 28)。结果:全科医生和助产士都在努力正确识别有HbP危险的种族方面挣扎。关于隐私的伦理问题似乎源于第二次世界大战的经验,当时种族和宗教登记促进了犹太人的驱逐出境,并在举行焦点小组会议时加深了政治气氛。一些受访者认为种族问题可能会破坏与客户的关系。软件程序阻止全科医生记录有风险的患者的种族。对患者的经济影响也是一个问题。尽管如此,受访者对筛查还是很满意的,并且熟悉识别种族并将其用于个人患者护理。结论:尽管卫生专业人员普遍对筛查持肯定态度,但在引入此类计划之前,需要澄清围绕基于种族的HbP携带者筛查的伦理,财务和实践问题。初级保健专业人员可以通过专业组织作为目标,但他们需要国家政策支持。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱:kefu@zhangqiaokeyan.com

京公网安备:11010802029741号 ICP备案号:京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有
  • 客服微信

  • 服务号