A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States

Garrison Nanibaa A.; Sathe Nila A.; Antommaria Armand H. Matheny; Holm Ingrid A.; Sanderson Saskia C.; Smith Maureen E.; McPheeters Melissa L.; Clayton Ellen W.

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A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States

机译：对美国个人广泛同意和数据共享观点的系统文献综述

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proposed that de-identified human data and specimens be included in biobanks only if patients provide consent. The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all research participants.

机译：建议只有在患者同意的情况下，才将身份不明的人类数据和标本包括在生物库中。美国国立卫生研究院基因组数据共享政策于2015年生效，需要几乎所有研究参与者的广泛同意。

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《Genetics in medicine》 |2016年第7期|共9页
作者
Garrison Nanibaa A.; Sathe Nila A.; Antommaria Armand H. Matheny; Holm Ingrid A.; Sanderson Saskia C.; Smith Maureen E.; McPheeters Melissa L.; Clayton Ellen W.;
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正文语种 eng
中图分类医学遗传学;
关键词
biobank; broad consent; data sharing; systematic review; tiered consent;

机译：生物库;广泛同意;数据共享;系统审查;分层同意;

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1. 表示同意和不同意别人观点时采用的策略研究(英文) [J] . 吴雪花中国应用语言学：英文版 . 2006,第005期
2. A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States [J] . Garrison Nanibaa A., Sathe Nila A., Antommaria Armand H. Matheny, Genetics in medicine . 2016,第7期

机译：对美国个人广泛同意和数据共享观点的系统文献综述
3. Patient and provider perspectives on shared decision making: a systematic review of the peer-reviewed literature [J] . Williams Nyna, Fleming Chris, Doubleday Annie Journal of comparative effectiveness research . 2017,第8期

机译：患者和提供者对共享决策的观点：对同行评审文献的系统审查
4. Patient and provider perspectives on shared decision making: a systematic review of the peer-reviewed literature [J] . Williams Nyna, Fleming Chris, Doubleday Annie Journal of comparative effectiveness research . 2017,第8期

机译：患者和提供者对共享决策的观点：对同行评审文献的系统审查
5. Knowledge sharing management in offshore software development outsourcing relationships from vendors' perspective: A systematic literature review protocol [C] . Alam Asad Ullah, Khan Siffat Ullah 2011 5th Malaysian Conference in Software Engineering . 2011

机译：从供应商的角度看离岸软件开发外包关系中的知识共享管理：系统的文献综述协议
6. Clinical trials, informed consent, & emergency medicine: A systematic literature review. [D] . Petty, Courtney. 2013

机译：临床试验，知情同意书和急诊医学：系统的文献综述。
7. A systematic literature review of individuals perspectives on broad consent and data sharing in the United States [O] . Nanibaa A. Garrison, Nila A. Sathe, Armand H. Matheny Antommaria, -1

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8. A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States [O] . Riley Taitingfong, Cinnamon S Bloss, Cynthia Triplett, 2020

机译：美洲原住民和太平洋岛民对美国健康数据隐私观点的系统文献综述

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States

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