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A qualitative study on the perceived impact of using an integrated community‐based supportive cancer service

机译:基于综合社区支持性癌症服务的感知影响的定性研究

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Abstract Objective “Improving the Cancer Journey” (ICJ) is an original, community‐based, multidisciplinary service offering holistic support to people diagnosed with cancer in Scotland. It is the first service of its kind in the UK. The aim of this qualitative study was to explore the experiences of people who have used this service. Method Twenty service users were purposively sampled to capture a diverse range of age, sex, cancer types, and deprivation status. Semi‐structured interviews explored their experiences of using ICJ. Interviews were transcribed verbatim and thematically analysed. Results Thirteen women and seven men (mean age 58?years) were interviewed. Three themes were identified: “one person, one place,” “routes to unexpected support” and “safety net.” Conclusion Improving the Cancer Journey was perceived to be beneficial because it met the holistic needs of the ICJ service users. By helping people address concerns earlier rather than later, it prevented problems becoming unmanageable. Having an accessible expert to guide and support them through a range of services provided reassurance and created the space to self‐manage at a time of distress. These original findings are internationally relevant because there is little evidence on the impact of holistic support services from the patient perspective.
机译:摘要目的“改善癌症旅程”(ICJ)是一个原始的社区,多学科服务,为苏格兰诊断患有癌症的人提供全面支持。这是英国的第一次服务。这种定性研究的目的是探讨使用此服务的人的经历。方法二十服务用户被杀害以捕获各种年龄,性别,癌症类型和剥夺地位。半结构化访谈探讨了使用ICJ的经验。采访逐字转录并进行主题分析。结果采访了十三个妇女和七名男子(平均年龄58岁)。确定了三个主题:“一个人,一个地方,”“出乎意料的支持”和“安全网”。结论改善癌症旅程被认为是有益的,因为它达到了ICJ服务用户的整体需求。通过帮助人们提前的疑虑而不是以后,它阻止了问题变得无法管理。拥有一个可访问的专家来指导和支持他们通过一系列服务提供保证,并在遇险时创造了自我管理的空间。这些原始调查结果是国际相关的,因为从患者的角度来看,很少有关于整体支持服务的影响。

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