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Children with learning disabilities: A phenomenological study of the lived experiences of Iranian mothers

机译:有学习障碍的儿童:伊朗母亲生活经历的现象学研究

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Nursing as a family-oriented profession involves supporting mothers of children with learning disabilities to gain an awareness of their role. However, few studies have explored the whole experience of such mothers. This study embarks on an understanding of lived experiences of Iranian mothers who have children with learning disabilities. A qualitative approach was adopted using the phenomenology of semi-structured interviews carried out with six Iranian mothers whose children attended a special school in Tehran. The data were analysed in line with van Manen's suggestions. Two main themes were abstracted; being the centre of stress circles and being in the midst of life and death. Themes include care management challenges for self and child, experiencing through helplessness and hopefulness and experiencing self devote and self neglect. Overall, a majority of mothers experienced a stressful life. The study concludes that Iranian mothers' lived experience of having children with learning disabilities can be likened to the constant swing of a pendulum between two polarities of positive and negative feelings. This knowledge can provide an heuristic to help health staff guide mothers in adjusting to their children who have learning disabilities.
机译:护理是一项面向家庭的职业,涉及支持学习障碍儿童的母亲以了解其角色。但是,很少有研究探索此类母亲的全部经历。这项研究着手了解有学习障碍儿童的伊朗母亲的生活经历。定性方法是采用对六名伊朗母亲进行的半结构化访谈的现象学,这些母亲的子女在德黑兰的一所特殊学校就读。数据分析符合van Manen的建议。抽象了两个主题。成为压力循环的中心,处于生与死之中。主题包括对自我和孩子的照料管理挑战,经历无助和希望的经历,以及奉献和自我忽视的经历。总体而言,大多数母亲过着紧张的生活。该研究得出的结论是,伊朗母亲生有学习障碍儿童的经历可以比作钟摆在积极和消极情绪两个极性之间的不断摆动。这些知识可以提供启发,以帮助卫生人员指导母亲适应学习障碍的孩子。

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