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Do Virtual Communities Matter For The Social Support Of Patients?: antecedents And Effects Of Virtual Relationships In Online Communities

机译:虚拟社区对患者的社会支持有意义吗?:在线社区中虚拟关系的产生和影响

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Purpose - The purpose of this paper is to explore whether online communities meet their potential of providing environments in which social relationships can be readily established to help patients cope with their disease through social support. The paper aims to develop and test a model to examine antecedents of the formation of virtual relationships of cancer patients within virtual communities (VCs) as well as their effects in the form of social assistance. Design/methodology/research - Data were collected from members of virtual patient communities in the German-speaking internet through an online survey to which 301 cancer patients responded. The data were analyzed with partial least square (PLS) structural equation modeling. Findings - Virtual relationships for patients are established in VCs and play an important role in meeting patients' social needs. Important determinants for the formation of virtual relationships within virtual communities for patients are general internet usage intensity (active posting vs lurking) and the perceived disadvantages of CMC. The paper also found that virtual relationships have a strong effect on virtual support of patients; more than 61 per cent of the variance of perceived social assistance of cancer patients was explained by cancer-related VCs. Emotional support and information exchange delivered through these virtual relationships may help patients to better cope with their illness. Research limitations/implications - In contrast to prior research, known determinants for the formation of virtual relationships (i.e. marital status, educational status, gender, and disease-related factors such as the type of cancer as control variables, as well as general internet usage motives, and perceived advantages of CMC as direct determinants) played a weak role in this study of German cancer patients. Studies on other patient populations (i.e. patients with other acute illnesses in other cultures) are needed to see if results remain consistent. Practical implications - Participants and administrators of patient VCs have different design criteria for the improvement of VCs for patients (e.g. concerning community management, personal behaviour and the usage of information in online communities). Once the social mechanisms taking place in online communities are better understood, the systematic redesign of online communities according to the needs of their users should be given priority. Originality/value - Little research has been conducted examining the role of VCs for social relationships and social networks in general and for patients in particular. Antecedents and effects of virtual social relationships of patients have not been sufficiently theoretically or empirically researched to be better understood. This research combines various determinants and effects of virtual relationships from prior related research. These are integrated into a conceptual model and applied empirically to a new target group, i.e. VCs for patients.
机译:目的-本文的目的是探讨在线社区是否能够发挥其潜力,提供可以轻松建立社交关系的环境,以通过社会支持帮助患者应对疾病。本文旨在开发和测试一个模型,以检查癌症患者在虚拟社区(VC)中形成虚拟关系的前因及其以社会援助形式的影响。设计/方法学/研究-数据是通过在线调查从说德语的互联网上虚拟患者社区的成员收集的,对301名癌症患者进行了回应。使用偏最小二乘(PLS)结构方程模型分析数据。调查结果-在VC中建立了患者的虚拟关系,并在满足患者的社会需求方面发挥了重要作用。对于患者而言,在虚拟社区内形成虚拟关系的重要决定因素是一般的互联网使用强度(主动发布与潜伏)以及CMC的公认缺点。该论文还发现,虚拟关系对患者的虚拟支持有很强的影响。癌症相关风险投资人解释了癌症患者感知的社会援助差异的61%以上。通过这些虚拟关系提供的情感支持和信息交流可以帮助患者更好地应对疾病。研究的局限性/意义-与先前的研究相反,虚拟关系形成的已知决定因素(即婚姻状况,教育状况,性别和与疾病相关的因素,例如癌症的类型作为控制变量,以及互联网的普遍使用) CMC作为直接决定因素的动机和感知优势在德国癌症患者的这项研究中起着微弱的作用。需要对其他患者人群(即在其他文化中患有其他急性疾病的患者)进行研究,以查看结果是否保持一致。实际意义-患者VC的参与者和管理者对于改善患者VC具有不同的设计标准(例如,关于社区管理,个人行为和在线社区中信息的使用)。一旦更好地理解了在线社区中发生的社交机制,就应该优先考虑根据其用户需求对在线社区进行系统的重新设计。原创性/价值-很少进行研究来研究风险投资在整体社会关系和社交网络中的作用,尤其是对患者的作用。对患者虚拟社会关系的前因和影响尚未进行充分的理论或经验研究,以使人们更好地理解。这项研究结合了来自先前相关研究的各种决定因素和虚拟关系的影响。这些被集成到概念模型中,并根据经验应用于新的目标群体,即患者的VC。

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