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Physical and psychosocial challenges in adult hemophilia patients with inhibitors

机译:患有抑制剂的成年血友病患者的身体和社会心理挑战

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Abstract: Numerous challenges confront adult hemophilia patients with inhibitors, including difficulty in controlling bleeding episodes, deterioration of joints, arthritic pain, physical disability, emotional turmoil, and social issues. High-intensity treatment regimens often used in the treatment of patients with inhibitors also impose significant scheduling, economic, and emotional demands on patients and their families or primary caregivers. A comprehensive multidisciplinary assessment of the physical, emotional, and social status of adult hemophilia patients with inhibitors is essential for the development of treatment strategies that can be individualized to address the complex needs of these patients.
机译:摘要:成年血友病患者面临抑制剂的众多挑战,包括难以控制出血发作,关节恶化,关节炎疼痛,身体残疾,情感动荡和社会问题。通常在用抑制剂治疗患者中使用的高强度治疗方案还会对患者及其家人或主要护理人员施加明显的日程安排,经济和情感要求。对有抑制剂的成人血友病患者的身体,情感和社会状况进行全面的多学科评估,对于制定可以个性化解决这些患者复杂需求的治疗策略至关重要。

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