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Communication Support for People with ALS

机译:ALS患者的沟通支持

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Almost all people with amyotrophic lateral sclerosis (ALS) experience a motor speech disorder, such as dysarthria, as the disease progresses. At some point, 80 to95%of people with ALS are unable to meet their daily communication needs using natural speech. Unfortunately, once intelligibility begins to decrease, speech performance often deteriorates so rapidly that there is little time to implement an appropriate augmentative and alternative communication (AAC) intervention; therefore, appropriate timing of referral for AAC assessment and intervention continues to be a most important clinical decision-making issue. AAC acceptance and use have increased considerably during the past decade. Many people use AAC until within a few weeks of their deaths.
机译:随着疾病的发展,几乎所有患有肌萎缩性侧索硬化症(ALS)的人都会出现运动言语障碍,例如构音障碍。在某些时候,80%至95%的ALS患者无法使用自然语音来满足他们的日常交流需求。不幸的是,一旦清晰度开始下降,语音性能通常就会迅速下降,以至于几乎没有时间实施适当的增强和替代交流(AAC)干预措施。因此,适当的转诊时间以进行AAC评估和干预仍然是最重要的临床决策问题。在过去的十年中,AAC的接受和使用已大大增加。许多人会在死后几周内使用AAC。

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