Objective To investigate and analysis the life quality of the rectal intestinal stoma patients and their families in three level of first -class hospital of Shanghai city .Methods One hundred and three patients with the rectal intestinal stoma and their families were surveyed by the quality of life core questionnaire of the European cancer research and treatment organization (EORTC QLQ-C30) and the simple health status questionnaire (SF-36) to assess their quality of life.Results The life quality of the rectal intestinal stoma patients was at a low level within three months after operation .The overall score of the life quality of the rectal intestinal stoma patients was (46.53 ±25.79), and was lower than (51.56 ±24.61) in the national norm, and the difference was statistically significant ( t =-2.115, P <0.05).The overall health score of SF-36 in patients’ families was (54.65 ±23.19), and was lower than (84.40 ±32.40) in the national norm, and the difference was statistically significant (t=-17.970, P<0.01).Compared the national norm , no significant differences were found in the scores of physiological function , body pain, emotional function, mental health in the rectal intestinal stoma patients and their families (P>0.05).The scores of physiological roles , vitality, social function in the rectal intestinal stoma patients and their families were lower than those of the national norms , and the difference was statistically significant (P<0.05).The body function, role function, cognitive function, social function, in the rectal intestinal stoma patients were positive correlation with the life quality of their families (r=0.198, 0.167, 0.072, 0.072, respectively;P<0.01 or P<0.05).Conclusions The life quality of the early rectal intestinal stoma patients and their families are not optimistic , and the life quality of patients interacts with the life quality of their families.The life quality of the rectal intestinal stoma patients is actively improved by the medical personnel , and the medical personnel should care for the life quality of patients ’ families.During the intervention the life quality of patients and their families should be taken as a whole , and the medical personnel should provide the families with necessary support and guidance .%目的：调查和分析直肠癌肠造口患者及其家属生活质量情况，为临床健康教育提供指导。方法采用欧洲癌症研究与治疗组织的生存质量核心问卷（EORTC QLQ-C30）及简明健康状况调查表（SF-36），对103例直肠癌肠造口患者及其家属的生活质量状况进行测定和评估。结果本组直肠癌肠造口患者术后3个月内生活质量处于较低水平，总体生活质量得分（46．53±25．79），低于国内常模（51．56±24．61）分，差异有统计学意义（t＝-2．115，P＜0．05）；本组直肠癌肠造口患者的家属SF-36量表总体健康评分（54．65±23．19），低于国内常模（84．40±32．40）分，差异有统计学意义（t＝-17．970， P＜0．01）；在生理功能、躯体疼痛、情感职能、精神健康方面的得分与常模比较差异无统计学意义（P＞0．05）；在生理职能、活力、社会功能方面的得分低于常模，差异有统计学意义（P＜0．05）。患者躯体功能、角色功能、认知功能、社会功能与家属生活质量呈正相关（r值分别为0．198，0．167，0．072，0．072；P＜0．01或P＜0．05）。结论术后早期直肠癌肠造口患者和家属的生活质量并不乐观，家属生活质量与患者生活质量相互影响，医务人员在积极改善直肠癌肠造口患者生活质量的同时也应关注家属的生活质量，在干预时应把两者作为一个整体，给家属必要的支持和指导。
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