脑性瘫痪患儿父母积极体验与家庭亲密度适应性调查及相关性研究

摘要

目的：调查分析脑性瘫痪（脑瘫）患儿父母在照顾脑瘫患儿时所感受的积极体验水平与家庭亲密度适应性的关系。方法采用便利抽样法，选取2013年12月—2014年2月在郑州大学第三附属医院住院的脑瘫患儿的父母246例。采用一般资料调查表、照顾者积极感受量表（ PAC）、家庭亲密度和适应性量表（ FACESⅡ）等调查脑瘫患儿父母积极体验及家庭亲密度适应性的状况，并分析两者的相关性。结果脑瘫患儿父母积极体验得分为（30.4±7.5）分，其中自我肯定维度得分为（16.3±4.4）分，生活展望维度得分为（14.2±4.3）分。不同性别、文化程度脑瘫患儿父母积极体验得分比较，差异有统计学意义（ P＜0.05）；不同年龄、职业、月均收入、家庭居住地脑瘫患儿父母积极体验得分比较，差异均无统计学意义（ P＞0.05）。照顾不同月龄、性别的脑瘫患儿的父母积极体验得分比较，差异有统计学意义（ P＜0.05）；照顾不同医疗费用来源、治疗时间的脑瘫患儿的父母积极体验得分比较，差异无统计学意义（P＞0.05）。PearSon相关分析结果显示，脑瘫患儿父母积极体验得分与实际亲密度、理想家庭亲密度、实际家庭适应性、理想适应性呈正相关（r=0.453、0.280、0.477、0.426，P＜0.001），与亲密度不满意程度呈负相关（r=-0.209，P=0.001），与适应性不满意程度无直线相关性（r=-0.117，P=0.066）。多重线性回归分析结果显示，父母性别、患儿性别、理想适应性是影响脑瘫患儿父母积极体验的影响因素（ P＜0.05）。结论脑瘫患儿父母积极体验得分处于中等偏高水平，理想适应性得分越高，脑瘫患儿父母感受到的积极体验越多。%Objective To investigate the relationship between positive experience of the parents with cerebral palsy children and adaptability of family cohesion. Methods By convenience sampling method,246 parents with cerebral palsy children who were hospitalized in the Third Affiliated Hospital of Zhengzhou University between December,2013 and February, 2014 were recruited. They were investigated about their positive experience and family cohesion by General Information Questionnaire,Positive Aspects of Caregiver(PAC)family cohesion and adaptation questionnaire(FACEsⅡ). The correlation between the two was analyzed. Results The mean score of the parents positive experience was(30. 4 ± 7. 5);the dimension of self affirmation was(16. 3 ±4. 4)and the dimension of life expectation was(14. 2 ±4. 3). The positive experience of parents with different gender and educational level was significantly different(P<0. 05),but it was not with different age,occupation, income per person and family address ( P >0. 05 ). The positive experience of parents taking care of children with different months and with different gender was statistically significant ( P <0. 05 ), but it was not while taking care of children with different medical expense sources and different length of treatment(P>0. 05). Pearson correlation analysis showed that parentsˊpositive experience score was positively correlated with real family adaptation,ideal family adaptation,real family cohesion and ideal family cohesion(r =0. 453,0. 280,0. 477,0. 426,P <0. 001),negatively correlated with dissatisfaction degree of family cohesion(r= -0. 209,P =0. 001)and no linear correlation with dissatisfaction degree of family adaptation(r = -0. 117,P=0. 066). Multiple linear regression showed that parentsˊ gender,childrenˊs gender,ideal family cohesion were important factors of parentsˊpositive experience. Conclusion Parentsˊpositive experience is on the higher than medium level. The higher the ideal family adaptation score is,the more positive experience parents will have.