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How Can Photo Sharing Inspire Sharing Genomes?

机译:照片如何共享激发共享基因组?

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People usually are aware of the privacy risks of publishing photos online, but these risks are less evident when sharing human genomes. Modern photos and sequenced genomes are both digital representations of real lives. They contain private information that may compromise people's privacy, and still, their highest value is most of times achieved only when sharing them with others. In this work, we present an analogy between the privacy aspects of sharing photos and sharing genomes, which clarifies the privacy risks in the latter to the general public. Additionally, we illustrate an alternative informed model to share genomic data according to the privacy-sensitivity level of each portion. This article is a call to arms for a collaborative work between geneticists and security experts to build more effective methods to systematically protect privacy, whilst promoting the accessibility and sharing of genomes.
机译:人们通常会意识到在线发布照片的隐私风险,但在分享人类基因组时,这些风险不太明显。现代照片和测序的基因组是真实生活的数字代表性。它们包含可能会损害人们隐私的私人信息,并且仍然,只有在与他人分享时,他们的最高次数才会实现。在这项工作中,我们在共享照片和共享基因组的隐私方面之间存在类比,这阐明了后者的隐私风险给公众。另外,我们示出了根据每个部分的隐私敏感性水平来共享基因组数据的替代通知模型。本文是对遗传学家和安全专家之间的合作工作的召集,以建立更有效的方法来系统地保护隐私,同时促进基因组的可访问性和共享。

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