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A walking stick in one hand and a chainsaw in the other: Patients’ perspectives of living with multimorbidity

机译:一只手握住拐杖,另一只手握住电锯:患者对多发病率生活的看法

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摘要

AIMS: Multimorbidity is common, yet there are major gaps in research, particularly among younger and indigenous populations. This research aimed to understand patients’ perspectives of living with multimorbidity. METHODS: A qualitative study of 61 people living with multimorbidity, 27 of whom were Māori and a third aged under 65, from urban and rural regions in New Zealand. Six focus groups and 14 interviews were conducted, recorded, transcribed and analysed. RESULTS: For many participants, living with multimorbidity disrupted their ‘normal’ lives, posing challenges in everyday activities such as eating and toileting, working and managing medications. Dealing with the health system posed challenges such as accessing appointments and having enough time in consultations. Cultural competency, good communication and continuity of care from healthcare providers were all valued. Participants had many recommendations to improve management, including a professional single point of contact to coordinate all specialist care. CONCLUSIONS: Living with multimorbidity is often challenging requiring people to manage their conditions while continuing to live their lives. This research suggests changes are needed in the health system in New Zealand and elsewhere to better manage multimorbidity thus improving patient’s lives and reducing costs to the health sector and wider society.
机译:目的:多重发病是很常见的,但是研究方面存在重大差距,特别是在年轻人和土著人群中。这项研究旨在了解患者对多发病率生活的看法。方法:定性研究来自新西兰城市和农村地区的61名患有多种疾病的人,其中27人为毛利人,三分之一为65岁以下的人。进行了六个焦点小组和14次访谈,进行了记录,转录和分析。结果:对于许多参与者而言,患有多种疾病的患者扰乱了他们的“正常”生活,在饮食,上厕所,工作和管理药物等日常活动中构成了挑战。与卫生系统打交道带来了挑战,例如获得任命和有足够的咨询时间。文化能力,良好的沟通和医疗保健提供者的连续性都受到重视。与会者提出了许多改善管理的建议,包括协调所有专家护理的专业单点联系。结论:多发性疾病通常是挑战,要求人们在继续生活的同时管理好自己的状况。这项研究表明,新西兰和其他地区的卫生系统需要进行变革,以更好地管理多种疾病,从而改善患者的生活,并降低卫生部门和整个社会的成本。

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