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Younger stroke survivors' experiences of family life in a long-term perspective: a narrative hermeneutic phenomenological study

机译:年轻的中风幸存者从长远角度来看的家庭生活经历:叙事学的解释现象学研究

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摘要

The psychosocial consequences following a stroke are known to be challenging, influencing the stroke survivors’ ability toparticipate in and carry out the taken-for-granted roles and activities in family life. This study explored how living with theconsequences of stroke impacted on family life in the late recovery phase, that is, six months or more after stroke onset. Twentytwostroke survivors aged 20–61 years were interviewed in-depth six months to nine years after stroke onset. The interviews wereanalyzed applying a narrative, hermeneutic phenomenological approach. The findings revealed challenges that varied with time,from an initial struggle to suffice in and balance the relationships and roles within the family early after the stroke, towards a moreresigned attitude later on in the stroke trajectory. The struggles are summarized in two main themes: “struggling to reenter thefamily” and “screaming for acceptance.” Nonestablished people living with stroke and stroke survivors in parental roles seem to beparticularly vulnerable. Being provided with opportunities to narrate their experiences to interested and qualified persons outsidethe home context might be helpful to prevent psychosocial problems
机译:众所周知,中风后的社会心理后果具有挑战性,影响中风幸存者参与和执行家庭生活中所赋予的角色和活动的能力。这项研究探讨了在中风后恢复阶段,即中风发作后六个月或更长时间,患有中风的后果如何影响家庭生活。中风发作后六个月至九年,对年龄在20-61岁的二十二岁中风幸存者进行了深入访谈。访谈采用叙事,诠释,现象学方法进行分析。研究结果揭示了各种挑战,这些挑战随着时间的推移而变化,从中风后的初期挣扎以适应家庭内部的关系和角色开始,到中风后家庭在中风轨迹中逐渐放弃。斗争被概括为两个主要主题:“努力重新进入家庭”和“为接受而尖叫”。与父母中风和中风幸存者生活在一起的未建立的人似乎特别脆弱。被提供机会向家庭背景之外的有兴趣和有资格的人讲述他们的经历可能有助于防止心理社会问题

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