The illness experience of youth with lupus/mixed connective tissue disease: a mixed methods analysis of patient and parent perspectives

Knight A.; Vickery M.; Fiks A. G.; Barg F. K.

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The illness experience of youth with lupus/mixed connective tissue disease: a mixed methods analysis of patient and parent perspectives

机译：青年狼疮/混合性结缔组织病的疾病经历：患者和父母观点的混合方法分析

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摘要

Objective We aimed to develop a model of the illness experience for youth with systemic lupus erythematosus (SLE)/mixed connective tissue disease (MCTD).

机译：目的我们旨在建立一种系统性红斑狼疮（SLE）/混合性结缔组织病（MCTD）的青少年疾病体验模型。

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《Lupus》 |2016年第9期|共12页
作者
Knight A.; Vickery M.; Fiks A. G.; Barg F. K.;
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原文格式 PDF
正文语种 eng
中图分类免疫性疾病;
关键词
Pediatric; lupus; mixed connective tissue disease; adolescent; young adult; parent;

机译：小儿;狼疮;混合性结缔组织病;青少年;年轻人;父母;

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1. The illness experience of youth with lupus/mixed connective tissue disease: a mixed methods analysis of patient and parent perspectives [J] . Knight A., Vickery M., Fiks A. G., Lupus . 2016,第9期

机译：青年狼疮/混合性结缔组织病的疾病经历：患者和父母观点的混合方法分析
2. Acroosteolysis in a patient with systemic lupus erythematosus/mixed connective tissue disease [J] . Davies Kristen, Bukhari Marwan, Ottewell Lesley Rheumatology . 2019,第3期

机译：患有全身狼疮红斑狼疮/混合结缔组织疾病的患者患者
3. Acroosteolysis in a patient with systemic lupus erythematosus/mixed connective tissue disease (vol 58, pg 426, 2019) [J] . Davies Kristen, Bukhari Marwan, Ottewell Lesley Rheumatology . 2019,第3期

机译：患有全身性狼疮红斑狼疮/混合结缔组织疾病的患者症（Vol 58，PG 426,2019）
4. Clinical Features end Outcome in Seven Patients with Hyaline or Mixed Variant Type of Castleman's Disease. A Single Center Experience [C] . A. Candoni, D. Damiani, R. Fanin European Haematology Association . 2002

机译：临床特征在透明或混合变种类型的Castleman疾病中的七名患者结束。单一中心经验
5. The developmental roots of mindfulness: An attachment based perspective on the origins of mindfulness and reflective functioning through the parent-child relationship, a mixed-methods analysis [D] . Morris, Ashley N. 2016

机译：心态的发展根源：一种基于父母关系的谨慎和反思功能的依恋的依恋视角，混合方法分析
6. Barriers and facilitators for mental healthcare in pediatric lupus and mixed connective tissue disease: a qualitative study of youth and parent perspectives [O] . Andrea M. Knight, Michelle E. Vickery, Alexander G. Fiks, 2015

机译：小儿狼疮和混合性结缔组织病的心理保健障碍和促进者：对青少年和父母观点的定性研究
7. Barriers and facilitators for mental healthcare in pediatric lupus and mixed connective tissue disease: a qualitative study of youth and parent perspectives [O] . 2015

机译：小儿狼疮和混合性结缔组织病的心理保健障碍和促进者：对青少年和父母观点的定性研究

The illness experience of youth with lupus/mixed connective tissue disease: a mixed methods analysis of patient and parent perspectives

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