Exploring the Medical and Psychosocial Concerns of Adolescents and Young Adults With Craniofacial Microsomia: A Qualitative Study

Hamilton Kayla V.; Ormond Kelly E.; Moscarello Tia; Bruce Janine S.; Merrell Sylvia Bereknyei; Chang Kay W.; Bernstein Jonathan A.

首页> 外文期刊>The Cleft palate-craniofacial journal: official publication of the American Cleft Palate-Craniofacial Association >Exploring the Medical and Psychosocial Concerns of Adolescents and Young Adults With Craniofacial Microsomia: A Qualitative Study

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Exploring the Medical and Psychosocial Concerns of Adolescents and Young Adults With Craniofacial Microsomia: A Qualitative Study

机译：探索青少年和青少年微观微粒症的医疗和心理社会关注：定性研究

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Objective: This study explores the experiences of adolescents and young adults with craniofacial microsomia, including the impact of growing up with this craniofacial condition on daily life and sense of self. The results may guide future research on optimally supporting individuals with craniofacial microsomia during this critical life phase.

机译：目的：这项研究探讨了青少年和年轻成年人与颅面微观组织的经验，包括在日常生活和自我意识上越来越大的影响。结果可以在这种关键生命期期间通过最佳地支持具有颅面微观症的个体的未来研究。

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来源
《The Cleft palate-craniofacial journal: official publication of the American Cleft Palate-Craniofacial Association》 |2018年第10期|共10页
作者
Hamilton Kayla V.; Ormond Kelly E.; Moscarello Tia; Bruce Janine S.; Merrell Sylvia Bereknyei; Chang Kay W.; Bernstein Jonathan A.;
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作者单位

Stanford Univ Sch Med Dept Genet Stanford CA 94305 USA;

Stanford Univ Sch Med Dept Genet Stanford CA 94305 USA;

Stanford Hlth Care Dept Cardiovasc Med Stanford CA USA;

Stanford Univ Sch Med Dept Pediat Stanford CA 94305 USA;

Stanford Univ Sch Med Dept Surg Stanford CA 94305 USA;

Stanford Univ Sch Med Dept Otolaryngol Stanford CA 94305 USA;

Stanford Univ Sch Med Div Med Genet Dept Pediat Stanford CA 94305 USA;

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原文格式 PDF
正文语种 eng
中图分类口腔科学;
关键词
craniofacial microsomia; hearing loss; psychosocial impact; surgical decision-making;

机译：颅面微观组织;听力损失;心理社会影响;手术决策;

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1. Exploring the Medical and Psychosocial Concerns of Adolescents and Young Adults With Craniofacial Microsomia: A Qualitative Study [J] . Hamilton Kayla V., Ormond Kelly E., Moscarello Tia, The Cleft palate-craniofacial journal: official publication of the American Cleft Palate-Craniofacial Association . 2018,第10期

机译：探索青少年和青少年微观微粒症的医疗和心理社会关注：定性研究
2. Exploring parental perspectives after commencement of flash glucose monitoring for type 1 diabetes in adolescents and young adults not meeting glycaemic targets: a qualitative study [J] . Boucher S. E., Aum S. Hye, Crocket H. R., Diabetic medicine: A journal of the British Diabetic Association . 2020,第4期

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3. “It is challenging… oh, nobody likes it!”: a qualitative study exploring Mozambican adolescents and young adults’ experiences with contraception [J] . Rehana Capurchande, Gily Coene, Ingrid Schockaert, BMC Women s Health . 2016,第1期

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6. The influence of perceived medical risks and psychosocial concerns on photoprotection behaviours among adults with xeroderma pigmentosum: a qualitative interview study in the UK [O] . Myfanwy Morgan, Rebecca Anderson, Jessica Walburn, 2019

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7. Exploring the Family factors associated with Suicide Attempts among Adolescents and Young Adults: A Qualitative Study [O] . Anju Mathew, Remadevi Saradamma, Vijayakumar Krishnapillai, 2020

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Exploring the Medical and Psychosocial Concerns of Adolescents and Young Adults With Craniofacial Microsomia: A Qualitative Study

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