Supporting families in genetic counselling services: a psychoeducational multifamily discussion group for at-risk colorectal cancer families

摘要

A non-experimental exploratory study examining a multifamily discussion group for colorectal at-risk individuals and their families is described. Four families attended a 90-minute four-session psychoeducational programme at a genetics centre of a Portuguese public hospital. A postprogramme focus group interview was performed to assess practical and psychosocial impact, and collect participants' views. Participants reported that the programme responds to the patients' and families' needs, enhancing their adaptation and coping to genetic illness. Results reinforce the need to integrate family-centred interventions in genetic counselling services and address the holistic experience of hereditary disease. We conclude that the programme provides an integrated healthcare setting to help at-risk individuals and their families cope with the specific biopsychosocial demands of their increased genetic susceptibility.