Interdisciplinary management of epidermolysis bullosa in the public setting: the Netherlands as a model of care.

摘要

An interdisciplinary team approach, in which the treatment can be individualized to each patient and his or her family and tailored to the severity of the disease, is most beneficial to the patient with epidermolysis bullosa (EB). In the Netherlands, the Center for Blistering Diseases in Groningen provides a large interdisciplinary EB team that performs at a high level to provide the best EB-patient care for both children and adults. The possibility of rapid diagnosis, the efficient carrousel-like clinics, and the continuity in care are typical elements of the Dutch method of delivering interdisciplinary EB care.