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Altruistic Living Kidney Donation Challenges Psychosocial Research and Policy: A Response to Previous Articles.

机译:利他生活肾脏捐赠挑战社会心理研究和政策:对先前文章的回应。

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BACKGROUND.: Policies with respect to altruistic living kidney donation to strangers (both nondirected and directed donation) should, in addition to medical criteria, preferably be based on valid attitude research data. However, deciding on what data are relevant is a normative issue. The challenge for both research and policy making is to bring together empirical and normative issues. METHODS.: By comparing two recent surveys, the authors shed light on the complex methodologic and ethical questions surrounding altruistic living kidney donation. RESULTS.: The authors found that the main methodologic issues were the distinction between the willingness to donate and the acceptability of the offer, the difference between public attitudes observed in surveys ("facts") and well-considered moral judgments ("norms"), and biases caused by a misperception of central moral concepts (e.g., discrimination and injustice). The authors argue that transplantation centers have a good case for applying or initiating altruistic living donation programs. Centers should seek to influence public attitudes if these attitudes are shown to be biased by prejudice and misunderstanding. CONCLUSIONS.: The authors advocate an interaction between research and policy making. Social research can best influence transplantation policies in altruistic living donation by in-depth interviews into the complicated background beliefs underlying personal preferences. In addition, the public should be encouraged to judge the immanent issues in a morally responsible way. In the end, a fair balance should be established between the impartial requirements of social justice and the partial motivations of individuals involved in altruistic living donation. Although discriminatory acts should be rejected categorically, donation policies should be willing to consider, support, and accept motivations based on personal loyalties.
机译:背景:除医学标准外,关于利他的活体肾脏向陌生人捐赠的政策(非定向和定向捐赠)应优选基于有效的态度研究数据。但是,确定哪些数据相关是一个规范性的问题。研究和政策制定面临的挑战是将经验和规范问题结合在一起。方法:通过比较两项最近的调查,作者阐明了围绕利他主义的活体肾脏捐赠的复杂方法论和道德问题。结果:作者发现,主要的方法论问题是捐赠意愿与要约的可接受性之间的区别,调查中观察到的公众态度(“事实”)与经过深思熟虑的道德判断(“规范”)之间的差异。以及由于对核心道德观念的误解(例如歧视和不公正)而引起的偏见。作者认为,移植中心是申请或启动无私生活捐赠计划的良好案例。如果这些态度被偏见和误解所偏颇,则中心应设法影响公众的态度。结论:作者主张研究与决策之间的相互作用。社会研究可以通过对个人喜好背后的复杂背景信念进行深入访谈,从而最好地影响无私生活捐赠中的移植政策。此外,应鼓励公众以道德上负责任的方式来判断内在问题。最后,应在社会正义的公正要求与参与利他生活捐赠的个人的部分动机之间建立公平的平衡。尽管歧视行为应被明确拒绝,但捐赠政策应愿意考虑,支持和接受基于个人忠诚度的动机。

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