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HDBuzz: Empowering patients through accessible education

机译:HDBuzz:通过无障碍教育增强患者能力

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摘要

Research and patient communities are firmly interdependent. Engaged patient communities provide biological samples and data that drive discoveries which, in turn, fuel the development of novel therapies. Historically, Huntington's disease (HD) has benefited from trusting interactions between scientists and patients. However, even for HD, communication between the research and patient communities is suboptimal. The web platform HDBuzz was created to rectify this situation by providing accurate, accessible information on the latest HD research to patients and their supporters.
机译:研究和患者社区是相互依存的。敬业的患者社区提供了推动发现的生物学样本和数据,从而推动了新疗法的发展。从历史上看,亨廷顿氏病(HD)得益于科学家和患者之间相互作用的信任。但是,即使对于HD,研究与患者社区之间的交流也不是很理想。创建网络平台HDBuzz是为了通过向患者及其支持者提供有关最新HD研究的准确,可访问的信息来纠正这种情况。

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