PERSONALISED HEALTHCARE AND INDIVIDUAL HEALTH DATA-A LEGAL PROBLEM ANALYSIS

摘要

A personalised, integrated, multi-disciplinary and above all pro-active healthcare model seems to be the next eHealth must-have. Disease management and personalised medicine techniques have long pursued the exploration of personal health data for this goal. The inclusion of ICT tools, ranging from advanced data mining techniques, over sophisticated electronic data management systems to personalised coaching telemedicine programmes, facilitate such a large scale exploration by healthcare professionals, health insurers, researchers, governmental bodies and even patients. The right to privacy however is at risk of compromise as this evolution may conflict with the current legal framework on data protection.