Studying Problematic Online Behavior of Adolescents With Mild Intellectual Disabilities and Borderline Intellectual Functioning: Methodological and Ethical Considerations for Data Collection

摘要

The aim of this study is to find a research method that results in capturing lived experiences of problematic online behavior of adolescents with mild intellectual disabilities and borderline intellectual functioning within four risk domains: commercial interests, aggression, sexuality, and values/ideology. Three research methods were examined and field-tested in small sample pilot studies: an online questionnaire (N = 16), two focus group interviews (N = 6 and N = 14), and a combination of participatory observations and visual elicitation (N = 2). Both the questionnaire and the focus group studies were not able to generate sufficient knowledge to capture lived experiences. Key issues that arose were the respondents’ comprehension of the research questions, their tendency to give socially desirable answers, the influence of group dynamics, and a lack of rapport between researcher and respondent. Results generated from the third pilot study were more promising. Participatory observations in the form of deep hanging out combined with conversational interviewing and elements of visual elicitation mended these issues and helped to create an authentic research environment, build real relationships, and level the playing field between researcher and respondents. Additionally, it invited the respondents to voice their opinions and feelings about their online experiences. Finally, the study inspires to use different communicational means with the adolescents to increase the understanding of their virtual world. Some important ethical and methodological limitations to these findings are discussed.