Niveles y motivos de satisfacción o insatisfacción en los familiares de los fallecidos en una unidad de cuidados paliativos

摘要

Objective: to know level and reasons for satisfaction or dissatisfaction in the relatives of deceased throughout 2011 in a CPU from the community of Madrid. Method: descriptive study, by anonymous and voluntary self-report sent via postal mail, including demographic variables of the respondent (relatives), their relationship with the deceased, 9 closed questions relating to the quality of care received, overall assessment of care received, environment perceived in the CPU and 3 open questions on reasons for satisfaction or dissatisfaction. Results: 66 people answered to the questionnaire with mean age 59,02. The response rate was 27.5%. 28.8% (19) men and 71.2% (47) women, with studies. The deceased was parent 56.1% and spouse by 40.9%. The average overall score was 9.11. Between 90% and 98.5% answered that his relative pain was well controlled, had a good quality of life before dying, his death was peaceful and in peace, had sufficient support team to deal with the illness and death, had facilities to speak to any member of the team and felt satisfied with the information received about the disease and its evolution. 50.8% believed that he had no outstanding issues, 29.2% who received assistance in this regard, 15.4% not received. 74.6% is preparing the grief properly, 88.9% replied that coordination with the other (grief support) team was proper. The atmosphere of the team was mainly assessed how welcoming and friendly. The reasons for satisfaction make reference to the treat "exquisite, toilet, food, friendliness and empathy, delicacy, voluntary and human heat" and general "facilities". Dissatisfaction to the "lack of information from the physician and the attention of various professionals (psychologist, physiotherapist, social worker and priest). Conclusions: we highlight the overall assistance includes aspects of the human and intimate sphere, vulnerable people appreciate them or miss when they do not receive them.