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Barriers and Facilitators Related to Rehabilitation Stays in Multiple Sclerosis

机译:与多发性硬化症康复相关的障碍和促进者

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摘要

>Background: Studies have shown the positive effects of multidisciplinary rehabilitation on disability and health-related quality of life in multiple sclerosis (MS). However, many patients do not seek such treatment, even if it is available free of charge. The aim of this study was to identify facilitators and barriers related to use of such treatment options.>Methods: Five focus group interviews with 27 MS patients were conducted. Three groups included patients who had been admitted to a multidisciplinary MS rehabilitation institution, and two groups included outpatients of a university hospital who had not applied for specialized rehabilitation. Interviews were audiotaped and transcribed, and were analyzed qualitatively by means of a modified form of systematic text condensation.>Results: Important factors influencing the use of an MS rehabilitation service were 1) the availability and suitability of initial information about the disease and the service, 2) assumptions and expectations about such a service, and 3) practical barriers in the patient's life. The prospect of having a retreat from work and family was described as a motivational factor. Lack of reorientation after diagnosis, fears and perceptions of being labeled as an MS patient, or having information overload and being confronted with disabled individuals were identified as barriers.>Conclusions: Communication skills, including information-giving skills, of neurologists in relation to newly diagnosed MS patients need improvement. Rehabilitation programs for MS patients should include stays of different durations and purposes to fit patients' needs. Health-care authorities should take measures to secure equal access to information about rehabilitation options across institutions and practicing physicians.
机译:>背景:研究表明,多学科康复对多发性硬化症(MS)中的残疾和与健康相关的生活质量具有积极作用。但是,即使可以免费获得,许多患者也不会寻求这种治疗。这项研究的目的是确定与使用此类治疗选择有关的促进因素和障碍。>方法:对27名MS患者进行了五个焦点小组访谈。三组包括已被纳入多学科MS康复机构的患者,两组包括未申请专业康复的大学医院的门诊患者。对访谈进行录音和转录,然后通过修改形式的系统文本压缩进行定性分析。>结果:影响MS康复服务使用的重要因素是:1)初始信息的可用性和适用性有关疾病和服务的信息; 2)对此类服务的假设和期望; 3)患者生活中的实际障碍。退缩工作和家庭的前景被描述为动机因素。诊断后缺乏重新定位,对被标记为MS患者或对信息的超负荷以及与残障人士面对面的恐惧和看法被视为障碍。>结论::沟通技巧,包括信息提供技巧,与新诊断的MS患者相关的神经科医生的需求有待改善。 MS患者的康复计划应包括不同持续时间和目的的住宿,以满足患者的需求。卫生保健当局应采取措施,确保各机构和执业医师平等获得有关康复选择的信息。

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