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Living with clipped wings—Patients’ experience of losing a leg

机译:wings着翅膀生活—患者失去一条腿的经验

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摘要

This study explores the lived experience of losing a leg as described by the patients themselves post-discharge. Studies have documented that regardless of aetiology patients are faced with severe physical as well as psychosocial challenges post-amputation. However, only few studies explore in-depth the patients’ perspective on the various challenges following the loss of a leg. The study uses the phenomenological approach of Reflective Lifeworld Research (RLR). Data were collected from 24 in-depth interviews with 12 Danish patients. Data analysis was performed according to the guidelines given in RLR. The essential meaning of losing a leg is a radical and existential upheaval, which restricts patients’ lifestyle and irretrievably alters their lifeworld. Life after the operation is associated with despair, and a painful sense of loss, but also with the hope of regaining personal independence. The consequences of losing a leg gradually materialize as the patients realize how the loss of mobility limits their freedom. Patients experience the professional help as primarily directed towards physical care and rehabilitation. The findings show that the loss of a leg and, subsequently, the restricted mobility carry with them an existential dimension which refers to limitation of action space and loss of freedom experienced as an exclusion from life. Our findings demonstrate a need for complementary care and stress the importance of an increased awareness of the psychosocial and existential consequences of losing a limb.
机译:这项研究探索了出院后患者自己描述的失去腿的生活经验。研究表明,无论病因如何,截肢后患者都面临严峻的身体和社会心理挑战。但是,只有很少的研究深入探讨患者对于腿部丢失后面临的各种挑战的看法。该研究使用了反思性生活世界研究(RLR)的现象学方法。数据来自对12名丹麦患者的24次深度访谈。根据RLR中给出的指导进行数据分析。失去一条腿的本质含义是一种激进的,存在的动荡,它限制了患者的生活方式,并无可挽回地改变了他们的生活世界。手术后的生活与绝望,痛苦的失落感相关,也与恢复个人独立性的希望有关。随着患者意识到失去活动能力如何限制其自由度,失去一条腿的后果逐渐成为现实。患者会获得主要针对身体护理和康复的专业帮助。研究结果表明,失去一条腿以及随之而来的行动不便会给他们带来一个生存的维度,即行动空间的限制和自由的丧失,这是生活中的一种排斥。我们的研究结果表明需要补充护理,并强调了增加对失去肢体的社会心理和生存后果的认识的重要性。

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