Introduction: HIV stigma affects medication adherence, psychosocial outcomes, and clinical management for youth living with HIV (YLWH). We explored the impact of HIV stigma on research participation, to inform the ethical engagement of this vulnerable group. Methods: We interviewed 40 YLWH, 20 caregivers, and 39 subject matter experts (SMEs); transcripts were analyzed by HK and EG, with emerging themes confirmed by JA and AC. Results: All categories of participants identified the impacts of stigma on YLWH research participation, suggesting implementing privacy protections, considering recruitment locations carefully, and developing supportive relationships with YLWH. SMEs suggested that YLWH experience uniquely high risks from stigma due to the compounding effects of developmental challenges and transitionary life period. Accidental HIV disclosure and subsequent stigma were identified as a risk of research participation; some viewed the creation of community through research as a benefit. Conclusion: Participants provided insights into stigma-related considerations for research with YLWH, which may guide engagement protocols.
展开▼
机译：简介：HIV 耻辱感影响 HIV 感染青年 （YLWH） 的服药依从性、社会心理结果和临床管理。我们探讨了 HIV 污名对研究参与的影响，以告知这一弱势群体的道德参与。方法： 我们采访了 40 名 YLWH、20 名护理人员和 39 名主题专家 （SME）;成绩单由 HK 和 EG 分析，新出现的主题由 JA 和 AC 确认。结果：所有类别的参与者都确定了污名化对 YLWH 研究参与的影响，建议实施隐私保护，仔细考虑招募地点，并与 YLWH 建立支持关系。中小企业认为，由于发育挑战和过渡生命期的复合效应，YLWH 经历了独特的高耻辱风险。意外披露 HIV 和随后的耻辱感被确定为参与研究的风险;一些人认为通过研究创建社区是一种好处。结论：参与者对 YLWH 研究的耻辱相关考虑因素提供了见解，这可能指导参与方案。
展开▼
