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A Cross-National Survey of People Living with Hemophilia: Impact on Daily Living and Patient Education in Central Europe

机译：血友病患者的跨国调查：对中欧日常生活和患者教育的影响

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摘要

Information about the impact of hemophilia on daily living and information preferences for patients and their caregivers in Central Europe has been limited.

机译：有关血友病对日常生活和信息偏好对患者及其监护人的影响的信息已有限。

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期刊名称 Patient preference and adherence
作者
Atanas Banchev; Angelika Batorova; Barbara Faganel Kotnik; Csongor Kiss; Gediminas Puras; Ester Zapotocka; Silva Zupancic-Salek;
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作者单位

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年(卷),期 2021(-1),-1
年度 2021
页码 -1
总页数 13
原文格式 PDF
正文语种
中图分类基础医学;
关键词
Central Europe; cross-national survey; hemophilia; patient preference; information sources;

机译：中欧;跨国调查;血友病;患者偏好;信息来源;

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专利

1. "WHAT MATTERS IN HEMOPHILIA" - A QUANTITATIVE SURVEY OF PEOPLE LIVING WITH OR CARING FOR SOMEONE WITH HEMOPHILIA [J] . Yang K., Weston S. B., Schneider B. R., Value in health: the journal of the International Society for Pharmacoeconomics and Outcomes Research . 2017,第5期

机译：“血友病中的重要事项 - 对血友病有人的人们的定量调查
2. "WHAT MATTERS IN HEMOPHILIA" - A QUANTITATIVE SURVEY OF PEOPLE LIVING WITH OR CARING FOR SOMEONE WITH HEMOPHILIA [J] . Yang K., Weston S. B., Schneider B. R., Value in health: the journal of the International Society for Pharmacoeconomics and Outcomes Research . 2017,第5期

机译：“血友病中的重要事项 - 对血友病有人的人们的定量调查
3. Top cited papers in International Psychogeriatrics: 6a. Quality of life for people with dementia living in residential and nursing home care: the impact of performance on activities of daily living, behavioral and psychological symptoms, language skills, and psychotropic drugs. [J] . Ballard C, Margallo Lana M, OBrien J International psychogeriatrics . 2009,第6期

机译：国际精神病学：6a中被引用次数最多的论文。生活在住宅和养老院中的痴呆症患者的生活质量：绩效对日常生活活动，行为和心理症状，语言技能和精神药物的影响。
4. Determination of Activities of Daily Living of independent living older people using environmentally placed sensors [C] . Zhang, Qing, Karunanithi, Mohan, Rana, Rajib, Annual Conference of Japanese Society for Medical and Biological Engineering;Annual International Conference of the IEEE Engineering in Medicine and Biology Society . 2013

机译：使用环境感应器确定独立生活的老年人的日常生活活动
5. Determining the impact of cardiac rehabilitation on activities of daily living in elderly cardiac patients. [D] . Johnston, Megan Elizabeth. 2010

机译：确定心脏康复对老年心脏病患者日常生活活动的影响。
6. An exploratory survey measuring stigma and discrimination experienced by people living with HIV/AIDS in South Africa: the People Living with HIV Stigma Index [O] . Monika ML dos Santos, Pieter Kruger, Shaun E Mellors, 2014

机译：探索性调查衡量南非艾滋病毒/艾滋病感染者的污名和歧视：艾滋病毒感染者的耻辱指数
7. PARE0014 PATIENT VOICE IN GOUT – A EUROPEAN PATIENT SURVEY TO UNDERSTAND THE NEEDS OF PEOPLE LIVING WITH GOUT [O] . Ana Vieira, Sebastian Micallef, Mary Vella, 2019

机译：Pare0014痛风中的患者声音 - 欧洲患者调查，了解与痛风生活的人们的需求

A Cross-National Survey of People Living with Hemophilia: Impact on Daily Living and Patient Education in Central Europe

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