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Patterns of Family Management of Childhood Chronic Conditions and Their Relationship to Child and Family Functioning

机译:儿童慢性病的家庭管理模式及其与儿童和家庭功能的关系

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摘要

Understanding patterns of family response to childhood chronic conditions based on a configuration of multiple variables or qualitative themes provides a comprehensive understanding of health-related challenges and their influence on family and child functioning. In this paper, we used the six scales comprising the Family Management Measure (FaMM) in a cluster analysis to describe a typology of family management and data from other measures of child and family functioning to validate and explain those clusters. The sample of 575 parents from 414 families of children who had diverse chronic conditions endorsed four patterns of response (Family Focused, Somewhat Family Focused, Somewhat Condition Focused, Condition Focused). We also considered the extent to which couples had shared or discrepant views of family management. Most (57%) families were in either the Family Focused or Somewhat Family Focused pattern. Single mothers were significantly less likely to be in the two patterns reflecting greater ease in family management and significantly more likely to be in the two patterns reflecting more difficulty. Patterns of family management were related significantly to family and child functioning, with families in the Family Focused and Somewhat Family Focused patterns demonstrating significantly better family and child functioning than families in the other two patterns.
机译:基于多个变量或定性主题的配置,了解家庭对儿童慢性病的反应方式,可以全面了解与健康相关的挑战及其对家庭和儿童功能的影响。在本文中,我们在聚类分析中使用了包括家庭管理量度(FaMM)在内的六种量表,以描述家庭管理的类型以及来自其他儿童和家庭功能量度的数据,以验证和解释这些聚类。来自414个患有各种慢性病的儿童家庭的575名父母的样本支持了四种反应模式(以家庭为中心,以家庭为中心,以疾病为中心,以疾病为中心)。我们还考虑了夫妻对家庭管理的看法是否相同。大多数(57%)家庭处于以家庭为中心或以家庭为中心的模式。单身母亲在两种模式下反映家庭管理更加容易的可能性大大降低,单身母亲在两种模式下反映难度更大的可能性更大。家庭管理的模式与家庭和儿童的功能显着相关,“以家庭为中心”和“以家庭为中心”模式下的家庭比其他两种模式的家庭和儿童的功能明显更好。

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