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This Lifetime Commitment: Public Conceptions of Disability and Noninvasive Prenatal Genetic Screening

机译:这一终身承诺:残疾和无创产前基因筛查的公共观念

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摘要

Recently, new noninvasive prenatal genetic screening technologies for Down syndrome and other genetic conditions have become commercially available. Unique characteristics of these screening tests have reignited long-standing concerns about prenatal testing for intellectual and developmental disabilities. We conducted a web-based survey of a sample of the US public to examine how attitudes towards disability inform views of prenatal testing in the context of these rapidly advancing prenatal genetic screening technologies. Regardless of opinion toward disability, the majority of respondents supported both the availability of screening and the decision to continue a pregnancy positive for aneuploidy. Individuals rationalized their support with various conceptions of disability; complications of the expressivist argument and other concerns from the disability literature were manifested in many responses analyzed.
机译:近来,用于唐氏综合症和其他遗传病的新的非侵入性产前遗传筛选技术已经商业化。这些筛查测试的独特特征重新点燃了人们长期以来对智力和发育障碍的产前测试的担忧。我们对美国公众的样本进行了基于网络的调查,以考察在这些快速发展的产前基因筛查技术的背景下,对残疾的态度如何有助于产前检查的观点。不管对残疾的看法如何,大多数受访者都支持进行筛查以及决定是否继续接受非整倍体妊娠的决定。个人以各种残疾观念合理化了他们的支持;表现主义观点的复杂性以及残疾文献中的其他问题在许多分析中都得到了体现。

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