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Construction and validation of the chronic acquired polyneuropathy patient-reported index CAP-PRI: a disease-specific health-related quality of life instrument

机译：慢性获得性多发性神经病患者报告的指标 CAP-PRI的构建和验证：一种与疾病有关的与健康有关的生活质量仪器

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IntroductionGeneric health-related quality of life (HRQOL) patient-reported outcome measures have been used in patients with chronic immune-mediated polyneuropathies. We have created a disease-specific HRQOL instrument.

机译：引言慢性免疫介导的多发性神经病患者已采用一般健康相关的生活质量（HRQOL）患者报告的结局指标。我们创建了一种针对疾病的HRQOL仪器。

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期刊名称 other
作者
Kelly G. Gwathmey; Mark R. Conaway; Reza Seyedsadjadi; Amruta Joshi; Carolina Barnett; Vera Bril; Eduardo Ng; William David; Karissa Gable; Jeffrey T. Guptill; Lisa D. Hobson-Webb; Jennifer Dineen; Michael Hehir; Thomas H. Brannagan III; Esther Byun; Margaret Adler; Ted M. Burns;
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年(卷),期 -1(54),1
年度 -1
页码 9–17
总页数 17
原文格式 PDF
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关键词
Quality of life immune-mediated polyneuropathy chronic inflammatory demyelinating polyneuropathy patient-reported outcome measure CAP-PRI;

机译：生活质量;免疫介导的多发性神经病;慢性炎症性脱髓鞘多发性神经病;患者报告的结局指标;CAP-PRI;

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1. Construction and validation of the chronic acquired polyneuropathy patient-reported index (CAP-PRI): A disease-specific, health-related quality-of-life instrument [J] . Gwathmey Kelly G., Conaway Mark R., Sadjadi Reza, Muscle and Nerve . 2016,第1期

机译：慢性获得性多发性神经病患者报告指数（CAP-PRI）的构建和验证：一种与疾病有关的，与健康有关的生活质量指标
2. Validation of a new patient-reported outcome instrument of health-related quality of life specific to patients with alcohol use disorder: the Alcohol Quality of Life Scale (AQoLS) [J] . Luquiens A., Whalley D., Laramee P., Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation . 2016,第6期

机译：验证针对酒精滥用障碍患者的，与患者有关的健康相关生活质量的新患者报告结局工具：酒精生活质量量表（AQoLS）
3. Development and initial validation of a new preference-based disease-specific health-related quality of life instrument for erectile function. [J] . Torrance GW, Keresteci MA, Casey RW, Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation . 2004,第2期

机译：一种新的基于偏好的针对疾病的健康相关勃起功能生活质量工具的开发和初步验证。
4. Health-Related Quality of Life in Male Steel Industry Workers in Tunisia [C] . Amira Omrane, Chayma Harrathi, Taoufik Khalfallah, International Conference on Human Interaction and Emerging Technologies . 2020

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5. A Comparison of Generic and Disease-Specific Health-Related Quality of Life Measures in Hemophilia Patients: An Online Study [D] . Memari, Khashayar. 2019

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6. Establishing content-validity of a disease-specific health-related quality of life instrument for patients with chronic hypersensitivity pneumonitis [O] . Kerri I. Aronson, Maha Ali, Evgeniya Reshetynak, 2021

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7. Validity and test retest reliability of the vascular quality of life Questionnaire-6 : A short form of a disease-specific health-related quality of life instrument for patients with peripheral arterial disease [O] . Kumlien, Christine, Nordanstig, Joakim, Lundström, Mats, 2017

机译：血管生活质量的有效性和测试再测试可靠性问卷-6：外周动脉疾病患者的疾病特定健康相关生活质量仪器的简短形式

Construction and validation of the chronic acquired polyneuropathy patient-reported index CAP-PRI: a disease-specific health-related quality of life instrument

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