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BRIDGING BARRIERS: CHINESE AMERICAN SENIORS’ END-OF-LIFE DECISION-MAKING

机译:桥接障碍:中美老年人的终生决策

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摘要

In the United States (US), the underutilization of hospice resources by Asian Americans is evident in the low rates of hospice enrollment, 2.4%, where they comprise 5.6% of the US population. The low utilization of end-of-life (EOL) services has been associated with increased deaths in hospitals and increased costs to Medicare, revealing a significant health disparity within the Asian American community.Chinese Americans represent the largest subgroup of Asian Americans with a population of 4.5 million in the US. Seminal studies on Chinese American Seniors EOL have accentuated the taboo nature of the topic, and recommended health care professionals to prevaricate EOL discussions to promote cultural sensitivity. In contrast, recent findings in literature suggests Chinese American Seniors’ lack of knowledge as a main contributor to the underutilization of EOL resources. A pilot study using semi-structured interviews was conducted to understand the preferences and EOL decision-making processes of Chinese American Seniors. Using Constructivist Grounded Theory methodology, data from the interviews was analyzed in an iterative process to reveal the emergent themes of trust / distrust towards health care professionals and health care systems, the role of religion in decision-making, and protecting the family. Synthesis of the findings reveal the role of health care professionals in bridging barriers to EOL decision-making among Chinese American Seniors.
机译:在美国(美国),亚裔美国人对临终关怀资源的利用不充分,这是因为临终关怀的入学率较低,仅为2.4%,占美国人口的5.6%。寿命终止(EOL)服务利用率低与医院死亡人数增加和医疗保险费用增加有关,这表明亚裔美国人社区内部存在巨大的健康差异。华裔美国人是人口中最大的亚裔美国人亚群在美国450万。关于华裔美国老年人EOL的开创性研究强调了该主题的禁忌性质,并建议医疗保健专业人员提前进行EOL讨论,以提高文化敏感性。相反,最近的文献研究表明,华裔美国老年人缺乏知识是导致EOL资源利用不足的主要原因。进行了一项使用半结构化访谈的试点研究,以了解华裔美国老年人的偏好和EOL决策过程。使用建构主义扎根理论方法,在一个迭代过程中对访谈中的数据进行了分析,以揭示新兴的主题,即对医疗保健专业人员和医疗保健系统的信任/不信任,宗教在决策中的作用以及保护家庭的主题。研究结果的综合揭示了医护人员在弥合美国华裔老年人EOL决策障碍方面的作用。

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