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WISHFUL THINKING: AN EXAMINATION OF PALLIATIVE HOME CARE CLIENTS WHO EXPRESSED A WISH TO DIE NOW

机译:满怀希望的思考:现在表达了愿死的姑息家庭护理客户的思考

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摘要

>PURPOSE: To provide the highest quality of person centered palliative care clinicians should prioritize understanding of client needs and preferences at end of life to inform tailored care planning. During clinical assessments, clients may voluntarily express a ‘wish to die’ either directly to the clinician or it may be indirectly reported second-hand to the clinician through an informal caregiver or family member. >METHODS: This study examined 4,840 interRAI Palliative Care assessments from community dwelling palliative home care clients in Ontario, Canada (2006–2011). The interRAI PC gathers a wide range of information on physical, cognitive, and social domains, as well as demographic, health service utilization, and care preferences which is then used by the clinician to inform the care planning process >RESULTS: 308 palliative home care clients (6.7 %) voluntarily expressed a ‘wish to die now’. In multivariate analyses predicting expression of a ‘wish to die’ strong independent variables included not being married/widowed, a shorter estimated prognosis, depressive symptoms, functional impairment, excessive amount of sleep, feeling completion regarding financial/legal matters, and struggling with the meaning of life. Of clients who expressed a ‘wish to die now’, clients who exhibited depressive symptoms (23.8 %) were also more likely to exhibit cognitive impairment and recent cognitive decline, weight loss, psychological distress. >DISCUSSION: Not all clients who expressed a ‘wish to die’ exhibited depression, pain and psychological distress. Findings promote the need for an individualized approach to care management. Clinicians should strive to embrace not fear discussing with the client their preferences for death.
机译:>目的:为了提供最高质量的以人为本的姑息治疗,临床医生应在生命终了时优先考虑客户的需求和偏好,以制定量身定制的治疗计划。在临床评估过程中,服务对象可以自愿向临床医生直接表达“死亡希望”,也可以通过非正式的看护人或家庭成员将二手信息间接报告给临床医生。 >方法:该研究调查了加拿大安大略省(2006-2011年)社区居民姑息家庭护理客户进行的4,840次interRAI姑息治疗评估。 interRAI PC收集了有关物理,认知和社会领域以及人口统计,卫生服务利用和护理偏好的广泛信息,然后临床医生将其用于告知护理计划过程>结果: 308名姑息性居家护理服务对象(6.7%)自愿表示“现在就死”。在多变量分析中,预测“愿意死亡”的强烈独立变量的表达包括未婚/丧偶,估计的预后较短,抑郁症状,功能障碍,睡眠过多,在财务/法律问题上感觉完满以及与生命的意义。在那些表示“愿死”的客户中,表现出抑郁症状(23.8%)的客户也更有可能表现出认知障碍和近期认知能力下降,体重减轻,心理困扰。 >讨论:并非所有表达“愿意死”的客户都表现出沮丧,痛苦和心理困扰。研究结果促使人们需要一种个性化的护理管理方法。临床医生应努力让自己不要害怕与服务对象讨论他们对死亡的偏好。

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