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Beliefs about Use of Complementary Health Approaches for Parkinson’s disease

机译:关于使用补充保健方法治疗帕金森氏病的信念

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摘要

Parkinson’s disease (PD) is the second most common neurodegenerative disorder in the United States, which requires ongoing medication therapy. Despite the high prevalence of complementary health approaches (CHA) being used among people with PD in several countries, little is known about the perceived effectiveness, safety and risk related to use of CHA. The purpose of this study was to describe CHA users’ beliefs about the effectiveness, safety and risk of CHA. A sub-sample (n = 70) of participants who reported using CHA and who completed all 12 items of the section of participants’ beliefs were taken from a larger study (n = 143) that described the proportion of individuals who used CHA to manage PD symptoms. Participants reported that CHA are somewhat effective to control or manage PD symptoms and necessary for PD management. However, they disagreed on possible adverse effects of CHA and their potential interactions with prescription medications. Participants were willing to share their CHA use with their doctors and/or nurses and had a neutral response to the costs of CHA. More scientific evidence on effectiveness and safety/risk of CHA is needed to assist individuals’ informed decision about using CHA and allocation of their healthcare spending. Nurses and other healthcare professionals need to be aware of CHA users’ beliefs about CHA used for PD and of the need for provision of adequate information and resources, including locating qualified CHA practitioners or databases of CHA.
机译:帕金森氏病(PD)是美国第二大最常见的神经退行性疾病,需要持续的药物治疗。尽管在一些国家中,PD患者中广泛使用补充健康方法(CHA),但对使用CHA的感知效果,安全性和风险知之甚少。这项研究的目的是描述CHA用户对CHA的有效性,安全性和风险的看法。报告了使用CHA并完成了参与者信念部分的所有12项的参与者的子样本(n = 70)来自更大的研究(n = 143),该研究描述了使用CHA进行管理的个人比例PD症状。参与者报告说,CHA在控制或管理PD症状方面有些有效,并且对于PD管理是必要的。但是,他们不同意CHA的可能不利影响以及它们与处方药的潜在相互作用。参与者愿意与医生和/或护士分享CHA的使用情况,并对CHA的费用持中立态度。需要更多有关CHA的有效性和安全性/风险的科学证据,以帮助个人就使用CHA和分配医疗支出做出明智的决定。护士和其他医疗保健专业人员需要了解CHA用户对用于PD的CHA的信念以及提供足够信息和资源的需求,包括找到合格的CHA执业医师或CHA的数据库。

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