A patient-centered system in a provider-centered world: challenges ofincorporating post-discharge wound data into practice

摘要

>Objective The proposed Meaningful Use Stage 3 recommendations require healthcare providers to accept patient-generated health data (PGHD) by 2017. Yet, we know little about the tensions that arise in supporting the needs of both patients and providers in this context. We sought to examine these tensions when designing a novel, patient-centered technology – mobile Post-Operative Wound Evaluator (mPOWEr) – that uses PGHD for post-discharge surgical wound monitoring. >Materials and Methods As part of the iterative design process of mPOWEr, we conducted semistructured interviews and think-aloud sessions using mockups with surgical patients and providers. We asked participants how mPOWEr could enhance the current post-discharge process for surgical patients, then used grounded theory to develop themes related to conflicts and agreements between patients and providers. >Results We identified four areas of agreement: providing contextual metadata, accessible and actionable data presentation, building on existing sociotechnical systems, and process transparency. We identified six areas of conflict, with patients preferring: more flexibility in data input, frequent data transfer, text-based communication, patient input in provider response prioritization, timely and reliable provider responses, anddefinitive diagnoses.>Discussion We present design implications and potential solutions to theidentified conflicts for each theme, illustrated using our work on mPOWEr. Our experiencehighlights the importance of bringing a variety of stakeholders, including patients, intothe design process for PGHD applications.>Conclusion We have identified critical barriers to integrating PGHD intoclinical care and describe design implications to help address these barriers. Our workinforms future efforts to ensure the smooth integration of essential PGHD into clinicalpractice.