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A Patient-Centered Perspective on Cancer Survivorship

机译:以患者为中心的癌症生存观

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摘要

Survivorship is a complicated notion because people often confuse a process of survivorship with a mythic identity of being a cancer survivor. This confusion may be a distraction to addressing the real-life struggles and challenges experienced by all people diagnosed with cancer. A more expansive perspective of survivorship, one that attends to patients’ physical, psychological, social, spiritual, and existential challenges throughout a continuum of care, would be more in line with what is known empirically about people’s experiences with cancer. In an effort to gain a patient-centered perspective on cancer, and one that emphasizes multiple dimensions of cancer survivorship, the author reports findings from a non-scientific social media poll (via Facebook and personal emails) in which survivors and colleagues working in the field of cancer survivorship answered the question: What does cancer survivorship mean to you? The comments are enlightening and useful for guiding the development of a patient-centered, and, thus, more comprehensive, approach to caring for people affected by cancer.
机译:生存是一个复杂的概念,因为人们经常将生存过程与癌症幸存者的神话身份混淆。这种困惑可能会分散人们对所有被诊断出患有癌症的人所经历的现实生活中的挣扎和挑战的注意力。一个更广阔的生存视角,即在整个护理过程中应对患者的身体,心理,社会,精神和生存挑战,这将更符合人们对癌症经历的经验性认识。为了获得以患者为中心的癌症观点,并强调癌症幸存者的多个维度,作者报告了一项非科学的社交媒体调查(通过Facebook和个人电子邮件)的发现,在该调查中,幸存者及其同事癌症生存率领域回答了以下问题:癌症生存率对您意味着什么?这些评论很有启发性,对于指导以患者为中心,从而更全面的方法来照顾受癌症影响的人的方法很有用。

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