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An Adaptive Mobile Health System to Support Self-Management for Persons With Chronic Conditions and Disabilities: Usability and Feasibility Studies

机译:支持慢性病和残疾人自我管理的自适应移动医疗系统:可用性和可行性研究

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摘要

BackgroundPersons with chronic conditions and disabilities (PwCCDs) are vulnerable to secondary complications. Many of these secondary complications are preventable with proactive self-management and proper support. To enhance PwCCDs' self-management skills and conveniently receive desired support, we have developed a mobile health (mHealth) system called iMHere. In 2 previous clinical trials, iMHere was successfully used to improve health outcomes of adult participants with spina bifida and spinal cord injury. To further expand use of iMHere among people with various types of disabilities and chronic diseases, the system needs to be more adaptive to address 3 unique challenges: 1) PwCCDs have very diverse needs with regards to self-management support, 2) PwCCDs’ self-management needs may change over time, and 3) it is a challenge to keep PwCCDs engaged and interested in long-term self-management.
机译:背景患有慢性疾病和残疾(PwCCD)的人很容易遭受继发性并发症。主动的自我管理和适当的支持可以预防许多继发性并发症。为了提高PwCCD的自我管理技能并方便地获得所需的支持,我们开发了一种称为iMHere的移动健康(mHealth)系统。在之前的2个临床试验中,iMHere成功地用于改善脊柱裂和脊髓损伤的成年参与者的健康状况。为了在各种类型的残疾和慢性病患者中进一步扩大iMHere的使用,该系统需要更具适应性,以应对3个独特的挑战:1)PwCCD在自我管理支持方面有非常不同的需求; 2)PwCCD的自我-管理需求可能会随着时间而改变,并且3)保持PwCCD对长期自我管理的兴趣和兴趣是一个挑战。

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