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fRAP 2.0: a community engagement method applied to cervical cancer disparities among Hispanic women

机译:fRAP 2.0:一种应用于西班牙裔女性宫颈癌差异的社区参与方法

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摘要

focused Rapid Assessment Process (fRAP) 2.0 is a community engagement approach combining geospatial mapping with rapid qualitative assessment in cyclical fashion within communities to capture multifactorial and multilevel features impacting primary care problems. fRAP 2.0 offers primary care researchers a methodology framework for exploring complex community features that impact primary healthcare delivery and outcomes. The fRAP 2.0 study design expands the fRAP from a sequential design to a cyclical process of geospatial mapping and rapid qualitative assessment in search of modifiable contextual factors. Research participants are stakeholders from various socioecological levels whose perspectives inform study outcomes that they may use to then become the agents of change for the very problems they helped explore. Here, we present a proof-of-concept study for fRAP 2.0 examining disparities in cervical cancer mortality rates among Hispanic women in Texas. The primary outcomes of interest are features at the community level, medical health system level and regional government policy levels that offer opportunities for collaborative interventions to improve cervical cancer outcomes. In this study, geospatial mapping of county and ZIP code-level variables impacting postdiagnosis cervical cancer care at community, medical and policy levels were created using publicly available data and then overlaid with maps created with Texas Cancer Registry data for cervical cancer cases in three of the largest population counties. Geographically disparate areas were then qualitatively explored using participant observation and ethnographic field work, alongside 39 key informant interviews. Roundtable discussion groups and stakeholder engagement existed at every phase of the study. Applying the fRAP 2.0 method, we created an action-oriented roadmap of next steps to improve cervical cancer care disparities in the three Texas counties with emphasis on the high disparity county. We identified local change targets for advocacy and the results helped convene a stakeholder group that continues to actively create on-the-ground change in the high-disparity county to improve cervical cancer outcomes for Hispanic women.
机译:重点快速评估过程 (fRAP) 2.0 是一种社区参与方法,将地理空间映射与社区内循环的快速定性评估相结合,以捕捉影响初级保健问题的多因素和多层次特征。fRAP 2.0 为初级保健研究人员提供了一个方法框架,用于探索影响初级保健服务和结果的复杂社区特征。fRAP 2.0 研究设计将 fRAP 从顺序设计扩展到地理空间映射和快速定性评估的循环过程,以寻找可修改的背景因素。研究参与者是来自不同社会生态学层面的利益相关者,他们的观点为研究结果提供了信息,他们可能会利用这些结果成为他们帮助探索的问题的变革推动者。在这里,我们提出了一项 fRAP 2.0 的概念验证研究,研究了德克萨斯州西班牙裔女性宫颈癌死亡率的差异。感兴趣的主要结局是社区层面、医疗卫生系统层面和地区政府政策层面的特征,这些特征为合作干预以改善宫颈癌结局提供了机会。在这项研究中,使用公开可用的数据创建了影响社区、医疗和政策层面诊断后宫颈癌护理的县和邮政编码级别变量的地理空间映射,然后与使用德克萨斯州癌症登记处数据创建的地图叠加,用于人口最多的三个县的宫颈癌病例。然后,通过参与者观察和人种学实地工作,以及 39 次关键线人访谈,对地理上不同的区域进行了定性探索。圆桌讨论小组和利益相关者参与存在于研究的每个阶段。应用 fRAP 2.0 方法,我们创建了一个以行动为导向的下一步路线图,以改善德克萨斯州三个县的宫颈癌护理差异,重点是高差异县。我们确定了当地变革的倡导目标,结果有助于召集一个利益相关者团体,该团体继续在高度差异的县积极创造实地变革,以改善西班牙裔妇女的宫颈癌预后。

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