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Investigative genetic genealogy practices warranting policy attention: Results of a modified policy Delphi

机译:值得政策关注的调查性遗传系谱实践:修改政策 Delphi 的结果

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摘要

A technique known as investigative genetic genealogy (IGG) was first introduced to criminal investigations in 2018, and it has since been used by U.S. law enforcement to help identify hundreds of criminal perpetrators and unidentified human remains. As expertise in IGG grows, policymakers have shown interest in regulating it. To help inform these efforts and to promote coherence in IGG governance as it expands, we recruited experts representing a spectrum of IGG-relevant professions and perspectives to identify and prioritize IGG practices for policy attention and to develop policy options for addressing them. In two rounds of a modified policy Delphi, 31 participants prioritized nine IGG practices for policy attention. These top priority practices relate to: consent and notification; case eligibility and criteria; data management, privacy, and security; and governance and accountability. Participants expressed a range of opinions, some strongly held, and did not reach complete consensus with respect to any of the practices. However, convergence was strongest with respect to law enforcement participation in direct-to-consumer genetic genealogy databases against terms of service, which a large majority opposed and almost half evaluated as top priority for policy attention. Participants also voiced strong and consistent concern about management of data and samples collected and generated during IGG and the governance of private laboratories involved in IGG. Our study demonstrates the feasibility and value of engaging with diverse experts over an extended period on a pressing matter of public policy and provides a needed empirical foundation for IGG policymaking.
机译:一种被称为调查性遗传系谱学 (IGG) 的技术于 2018 年首次被引入刑事调查,此后美国执法部门一直使用它来帮助识别数百名犯罪者和身份不明的人类遗骸。随着 IGG 专业知识的增长,政策制定者对监管它表现出了兴趣。为了帮助为这些工作提供信息,并在 IGG 治理的扩展过程中促进治理的一致性,我们招募了代表一系列 IGG 相关专业和观点的专家,以确定 IGG 实践并确定其优先级,以引起政策关注,并制定解决这些问题的政策选项。在修改后的政策 Delphi 的两轮中,31 名参与者优先考虑了 9 项 IGG 实践以获得政策关注。这些最优先的做法涉及:同意和通知;案件资格和标准;数据管理、隐私和安全;以及治理和问责制。参与者表达了一系列意见,其中一些意见强烈持有,并且没有就任何做法达成完全共识。然而,在执法部门参与直接面向消费者的遗传系谱数据库与服务条款的趋同性最强,绝大多数人反对,几乎一半的人将其评估为政策关注的首要任务。参与者还对 IGG 期间收集和生成的数据和样本的管理以及参与 IGG 的私人实验室的治理表示强烈和持续的担忧。我们的研究证明了就紧迫的公共政策问题与不同的专家长期接触的可行性和价值,并为 IGG 政策制定提供了必要的实证基础。

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